Closing Remarks by Michael Canmann: 2024 APBD Scientific and Community Conference Adult Polyglucosan Body Disease Research Foundation (APBDRF) 156 подписчиков Скачать
Strategies for Advancing APBD and Rare Disease Research - A Conversation with the NIH and the FDA Скачать
APBD and Bladder Issues Q&A with Dr. Melissa Reigle (in private practice, OH) - Sept. 22, 2021 Скачать
Orhan Akman, PhD discusses antisense oligonucleotide (ASO) as a novel therapeutic approach for APBD Скачать
Wladimir Bocca Vieira de Rezende Pinto discusses APBD and its neuromuscular clinical presentations Скачать
Part 17: If one sibling has symptoms and the other does not, does that conclude that its not APBD? Скачать
Part 14: Policies on whether medical staff can-or should-discuss or recommend pregnancy termination? Скачать
Part 12: Is the cerebellum affected clinically? Is there any treatment now or on the horizon? Скачать
Part 7: Would it be worth sharing some of the symptoms of APBD that are different from ALS symptoms? Скачать
Part 5: If the birth incidence is as high as these studies suggest, why don’t we see more cases? Скачать
David - A patient discusses the importance of the Adult PB Disease Research Foundation (APBDRF) Скачать
