Канал: The Potsie Zebra

I had a Septoplasty and THIS happened!!!....

I had a Septoplasty and THIS happened!!!....

An MOT adventure around my town....did it pass?

An MOT adventure around my town....did it pass?

The truth about my departure from Ehlers Danlos Support UK

The truth about my departure from Ehlers Danlos Support UK

Naidex 2021 - My experience

Naidex 2021 - My experience

A Z of EDS (Ehlers Danlos Syndrome)

A Z of EDS (Ehlers Danlos Syndrome)

Weight issues with a chronic illness

Weight issues with a chronic illness

My DNA shock!! Results revealed!

My DNA shock!! Results revealed!

Part 1......Finding my DNA origins - Taking the test

Part 1......Finding my DNA origins - Taking the test

Making a MCAD friendly Cornish Pasty from scratch!!!

Making a MCAD friendly Cornish Pasty from scratch!!!

Baking Focaccia for the first time ever.....for a competition! Am I brave or just stupid?

Baking Focaccia for the first time ever.....for a competition! Am I brave or just stupid?

Could I finally find relief from my Mast Cell Activation Disorder? Testing the Air Halo necklace.

Could I finally find relief from my Mast Cell Activation Disorder? Testing the Air Halo necklace.

Why I've been AWOL..........Our sad news

Why I've been AWOL..........Our sad news

Wheelchair Access fail in Hitchin (Bedfordshire)

Wheelchair Access fail in Hitchin (Bedfordshire)

24/7 Migraines!!!!! How my GP is trying to poison me!

24/7 Migraines!!!!! How my GP is trying to poison me!

Dear NHS......have you forgotten us?

Dear NHS......have you forgotten us?

LEGO Piano Review and hyperlapse build

LEGO Piano Review and hyperlapse build

Vegan chocolate UK {Dirty Cow} Product Testing

Vegan chocolate UK {Dirty Cow} Product Testing

Going into my Town Centre (Wheelchair point of view) NEW CAMERA!!

Going into my Town Centre (Wheelchair point of view) NEW CAMERA!!

The Potsie Zebra Live Stream

The Potsie Zebra Live Stream

My Nodular Prurigo

My Nodular Prurigo

Life Update August 2020

Life Update August 2020

It's Ok to hate the NHS right now.....Diagnosis was hidden from me!!

It's Ok to hate the NHS right now.....Diagnosis was hidden from me!!

My first trip out in 4 months!! What a UK shop now looks like....

My first trip out in 4 months!! What a UK shop now looks like....

My Coronavirus home test results (UK)

My Coronavirus home test results (UK)

I might have Coronavirus - What a UK home testing kit is like

I might have Coronavirus - What a UK home testing kit is like

Why a WEIGHTED BLANKET made me ill!!!

Why a WEIGHTED BLANKET made me ill!!!

THE VEGAN KIND May subscription box: Unboxing and Review

THE VEGAN KIND May subscription box: Unboxing and Review

My V.E Day Piano concert - Celebrating 75 years!

My V.E Day Piano concert - Celebrating 75 years!

The SECRET sufferers of Covid-19 (UK)

The SECRET sufferers of Covid-19 (UK)

2.6/26 Challenge for Ehlers Danlos Support UK - 26 songs on the Piano - Day 8 - The Final

2.6/26 Challenge for Ehlers Danlos Support UK - 26 songs on the Piano - Day 8 - The Final

2.6/26 Challenge for Ehlers Danlos Support UK - 26 songs on the Piano - Day 7

2.6/26 Challenge for Ehlers Danlos Support UK - 26 songs on the Piano - Day 7

2.6/26 Challenge for Ehlers Danlos Support UK - 26 songs on the Piano - Day 6

2.6/26 Challenge for Ehlers Danlos Support UK - 26 songs on the Piano - Day 6

2.6/26 Challenge for Ehlers Danlos Support UK - 26 Songs on the Piano - Day 5

2.6/26 Challenge for Ehlers Danlos Support UK - 26 Songs on the Piano - Day 5

2.6/26 Challenge for Ehlers Danlos Support UK - 26 Songs on the Piano - Day 4

2.6/26 Challenge for Ehlers Danlos Support UK - 26 Songs on the Piano - Day 4

2.6/26 Challenge for Ehlers Danlos Support UK - 26 Songs on the Piano - Day 3

2.6/26 Challenge for Ehlers Danlos Support UK - 26 Songs on the Piano - Day 3

2.6/26 Challenge for Ehlers Danlos Support UK - 26 Songs on the Piano - Day 2

2.6/26 Challenge for Ehlers Danlos Support UK - 26 Songs on the Piano - Day 2

2.6/26 Challenge for Ehlers Danlos Support UK - 26 Songs on the Piano - Day 1

2.6/26 Challenge for Ehlers Danlos Support UK - 26 Songs on the Piano - Day 1

What life is like in a Pandemic in the UK (And my Netflix recommendations)

What life is like in a Pandemic in the UK (And my Netflix recommendations)

My Covid-19 update - Life on lockdown UK

My Covid-19 update - Life on lockdown UK

I'm not ok - COVID-19

I'm not ok - COVID-19

Coronavirus shopping pandemic where I live (Cambridgeshire, UK)

Coronavirus shopping pandemic where I live (Cambridgeshire, UK)

A life update.........EDS/POTS/Sjogrens/Mental Health etc....

A life update.........EDS/POTS/Sjogrens/Mental Health etc....

C diff Post FMT 4 month update

C diff Post FMT 4 month update

I'm back! (Why I've been gone so long)

I'm back! (Why I've been gone so long)

Things I LOVE about CHRISTMAS in the UK

Things I LOVE about CHRISTMAS in the UK

Greater Occipital Nerve Injections - MY EXPERIENCE

Greater Occipital Nerve Injections - MY EXPERIENCE

Post FMT and C diff 1 month update

Post FMT and C diff 1 month update

I had to BEG for help with my numb legs!!!!!

I had to BEG for help with my numb legs!!!!!

I NEED YOUR HELP!!!

I NEED YOUR HELP!!!

Having C DIFFICILE in the UK

Having C DIFFICILE in the UK

Reacting to UK TOP CHRISTMAS TOYS 2019

Reacting to UK TOP CHRISTMAS TOYS 2019

I ended up BACK IN HOSPITAL and needed a transplant!!!!!

I ended up BACK IN HOSPITAL and needed a transplant!!!!!

Why I spent 7 WEEKS in hospital!!!

Why I spent 7 WEEKS in hospital!!!

Lego Expert VW Campervan build

Lego Expert VW Campervan build

World's first EDS nurse!!!

World's first EDS nurse!!!

Sjogrens fail.....

Sjogrens fail.....

I have to start all over again!!

I have to start all over again!!

Gastro fail again! (Despite an MRI proving I am ill!!)

Gastro fail again! (Despite an MRI proving I am ill!!)

Visiting the new Royal Papworth hospital - A wheelchair users perspective

Visiting the new Royal Papworth hospital - A wheelchair users perspective

My Sjogrens Meltdown

My Sjogrens Meltdown

The web's most searched questions - Googling Pots (Postural Orthostatic Tachycardia Syndrome)

The web's most searched questions - Googling Pots (Postural Orthostatic Tachycardia Syndrome)

I was right! Diagnosis revealed!!!

I was right! Diagnosis revealed!!!

The web's most searched questions - Googling EDS (Ehlers Danlos Syndrome)

The web's most searched questions - Googling EDS (Ehlers Danlos Syndrome)

Mental health in EDS/POTS and Chronic illness - My battle (recovery) Part 3

Mental health in EDS/POTS and Chronic illness - My battle (recovery) Part 3

Mental health in EDS/POTS and chronic illness - My battle (the worst of it all) - Part 2

Mental health in EDS/POTS and chronic illness - My battle (the worst of it all) - Part 2

Mental Health in EDS/POTS and chronic illness - Opening up about my battle - Part 1/3

Mental Health in EDS/POTS and chronic illness - Opening up about my battle - Part 1/3

My lip biopsy nightmare - 3 trips to hospital in 24 hours!!!

My lip biopsy nightmare - 3 trips to hospital in 24 hours!!!

My GP is refusing to give my pain relief meds - I nearly killed myself

My GP is refusing to give my pain relief meds - I nearly killed myself

Hospital nightmare...I was drugged!!!

Hospital nightmare...I was drugged!!!

10 year zebraversary.....What I've learnt and my advice.

10 year zebraversary.....What I've learnt and my advice.

An update after seeing my Rheumatologist - My GP is in for a shock!!

An update after seeing my Rheumatologist - My GP is in for a shock!!

Back to square one!!!!!

Back to square one!!!!!

My interests and hobbies

My interests and hobbies

Even the top gastro Dr isn't sure why I can't eat anymore!!

Even the top gastro Dr isn't sure why I can't eat anymore!!

I can't sit up......Neck issues

I can't sit up......Neck issues

My Pain clinic appointment at Addenbrooke's Hospital - A day in the life......

My Pain clinic appointment at Addenbrooke's Hospital - A day in the life......

What to say and what NOT to say to someone using a wheelchair

What to say and what NOT to say to someone using a wheelchair

Gastro Dr has failed me totally!!!

Gastro Dr has failed me totally!!!

My Grandma saved me from a major accident.....9 years after her death!!! - Halloween special

My Grandma saved me from a major accident.....9 years after her death!!! - Halloween special

Cineworld disabled/wheelchair access: My experience

Cineworld disabled/wheelchair access: My experience

WORST EVER reaction to flu jab!

WORST EVER reaction to flu jab!

Testing a foot detox patch - Will it help a Potsie Zebra?

Testing a foot detox patch - Will it help a Potsie Zebra?

Getting the Flu jab/vaccine - My experiences

Getting the Flu jab/vaccine - My experiences

20 questions: EDS themed

20 questions: EDS themed

Two new diagnoses and still no gastro answers: An update.....

Two new diagnoses and still no gastro answers: An update.....

My EDS Diagnosis (plus other illnesses) in pictures

My EDS Diagnosis (plus other illnesses) in pictures

Kitchen gadgets to help EDS (Ehlers Danlos Syndrome)

Kitchen gadgets to help EDS (Ehlers Danlos Syndrome)

My Finger splints, supports and physio gadgets for Ehlers Danlos Syndrome/EDS

My Finger splints, supports and physio gadgets for Ehlers Danlos Syndrome/EDS

So I had my scopes.....Absolute NIGHTMARE!!!

So I had my scopes.....Absolute NIGHTMARE!!!

Testing Neo G Ankle stabilisation supports

Testing Neo G Ankle stabilisation supports

I ended up in A&E!

I ended up in A&E!

HELP! The gastro drs are impossible AGAIN!!

HELP! The gastro drs are impossible AGAIN!!

Trying Elemental 028 Extra Nutritional drink

Trying Elemental 028 Extra Nutritional drink

Answers at last! Shocking gastro revelations! My Gastroparesis update.

Answers at last! Shocking gastro revelations! My Gastroparesis update.

Gastroparesis is now 'all in my head' - An update!

Gastroparesis is now 'all in my head' - An update!

Heat and gastroparesis flare update

Heat and gastroparesis flare update

Pots flare

Pots flare

My Gastroparesis journey and flare up

My Gastroparesis journey and flare up

Hospital Genie is launching a new look!!

Hospital Genie is launching a new look!!

I got dumped by my best friend after she got chronically ill!!!!

I got dumped by my best friend after she got chronically ill!!!!

Why I don't take pain meds anymore

Why I don't take pain meds anymore

Losing friends when you have EDS/POTS

Losing friends when you have EDS/POTS

How I cope at home with EDS and POTS

How I cope at home with EDS and POTS

My tips on surviving the heat with POTS (Postural Orthostatic Tachycardia Syndrome)

My tips on surviving the heat with POTS (Postural Orthostatic Tachycardia Syndrome)

EDS and hip issues (hip dysplasia)

EDS and hip issues (hip dysplasia)

I can’t get into the most basic of shops in my wheelchair!!

I can’t get into the most basic of shops in my wheelchair!!

Coming off Fexofenadine for 3 days. My experience....

Coming off Fexofenadine for 3 days. My experience....

Trying Kombucha in the UK for the first time

Trying Kombucha in the UK for the first time

My birthday Haul

My birthday Haul

Anxiety

Anxiety

Exciting news! My new project revealed!!

Exciting news! My new project revealed!!

Baby Feet skin peel testing

Baby Feet skin peel testing

British Trying American Candy

British Trying American Candy

My wheelchair, my home and my access issues

My wheelchair, my home and my access issues

Ehlers Danlos Syndrome awareness speech at Hinchingbrooke Hospital

Ehlers Danlos Syndrome awareness speech at Hinchingbrooke Hospital

Me and my Pots (Postural Orthostatic Tachycardia Syndrome)

Me and my Pots (Postural Orthostatic Tachycardia Syndrome)

EDS and me

EDS and me