Канал: Victoria Battles ALS

New hospital bed

New hospital bed

February 5, 2024

February 5, 2024

January 6, 2024

January 6, 2024

January 6, 2024

January 6, 2024

December 3, 2023

December 3, 2023

November 16, 2023

November 16, 2023

Bathroom renovation

Bathroom renovation

Using a Hoyer Lift to get to bed now

Using a Hoyer Lift to get to bed now

Biofeedback

Biofeedback

How I found out I had ALS (revised August 13, 2023)

How I found out I had ALS (revised August 13, 2023)

Looking for rainbows

Looking for rainbows

Cruising around

Cruising around

July 19, 2023

July 19, 2023

July 18, 2023

July 18, 2023

Stopped 2 ALS meds

Stopped 2 ALS meds

Follow my ALS Journey as I live with this disease.

Follow my ALS Journey as I live with this disease.

July 9, 2023

July 9, 2023

July 8, 2023

July 8, 2023

Maine is hot and humid!

Maine is hot and humid!

May 31, 2023

May 31, 2023

Today, as things change, my breathing is bad.

Today, as things change, my breathing is bad.

New adjustment on breathing machine

New adjustment on breathing machine

Legs have gotten weaker

Legs have gotten weaker

Relyvrio Hack

Relyvrio Hack

Conquer the Camper steps!

Conquer the Camper steps!

No more driving

No more driving

New ramp and van , cruising outside

New ramp and van , cruising outside

Started new ALS drug today

Started new ALS drug today

Needed help getting into the tub today, first time

Needed help getting into the tub today, first time

Having a support team, groups & caregiver is so essential for ALS patients

Having a support team, groups & caregiver is so essential for ALS patients

Hard to Turn Over in Bed

Hard to Turn Over in Bed

Mental illness and ALS

Mental illness and ALS

Walking with a cane going down a ramp, I fell

Walking with a cane going down a ramp, I fell

Medicare is automatically approved if you have ALS or ESRD

Medicare is automatically approved if you have ALS or ESRD

Our dog Benji, needs a haircut

Our dog Benji, needs a haircut

Last Boston visit, Dr. Ho confirmed that my hands and arms are strong!

Last Boston visit, Dr. Ho confirmed that my hands and arms are strong!

Testing the Fall Detection of the Sky Angel medical alert

Testing the Fall Detection of the Sky Angel medical alert

Knees locked up walking back to the car after the Menopause show! Thanks Ladies for your help!!

Knees locked up walking back to the car after the Menopause show! Thanks Ladies for your help!!

Planning for late stage ALS

Planning for late stage ALS

ALS Faith & Family

ALS Faith & Family

Getting a ramp built and a purple wheelchair!

Getting a ramp built and a purple wheelchair!

Victoria Battles ALS Live Stream

Victoria Battles ALS Live Stream

Fell on porch , now have a SkyAngel911FD

Fell on porch , now have a SkyAngel911FD

Stubborn me waited too long to get the AFOs

Stubborn me waited too long to get the AFOs

Wearing AFOs

Wearing AFOs

AF0s or braces for each foot

AF0s or braces for each foot

Winter weather is dangerous for people with ALS

Winter weather is dangerous for people with ALS

Mass General Hospital overnight 12/28/22 clinical study increased from 57 weeks to 162 weeks!

Mass General Hospital overnight 12/28/22 clinical study increased from 57 weeks to 162 weeks!

Merry Christmas!! Enjoy the Maine Celebration of Lights

Merry Christmas!! Enjoy the Maine Celebration of Lights

Nunzilla! A little fun from 1988!

Nunzilla! A little fun from 1988!

Two falls and my appetite is gone - very SAD

Two falls and my appetite is gone - very SAD

Overnight at Mass General Hospital, clinical study and being monitored & tested around the clock.

Overnight at Mass General Hospital, clinical study and being monitored & tested around the clock.

Welcome to my channel

Welcome to my channel