Ep 101. What's happening in May? Myositis Moonwalk, Mother's Day, Mental Health, One Minute Mondays Скачать
Intersectionality of Advocacy and Public Policy: How Your Story Impacts Legislative Decision-Making Скачать
Transitioning from Pediatrics to Adult Healthcare: The Good & Bad to Independent Care Coordination Скачать
Nisma Adbraman - Research Intern, Gene Therapy for Trisomy Disorders #internship #research #trisomy Скачать
Harlie Williams - Advocacy Intern, Newborn Screening Advocacy #internship #advocacy #newborn #survey Скачать
Kim Nguyen - General Intern, Biotech Funding and Social Media Management, Final Project Presentation Скачать
Jaimie Lopez-Alvarez - Health Equity Intern, Prenatal Testing: A Health Equity Project Presentation Скачать
Vivian Duong - Health Equity Intern, Community Workshop, Final Project #internship #health #equity Скачать
Ep 92. Know Your Family History: A Conversation About Health Legacy #podcast #family #health #legacy Скачать
Ep 91. #sizzle- Newborn screening can dispel inequities #podcast #equity #inequity #newbornscreening Скачать
Ep 91. #sizzle - Newborn screening conversations should start with OB. #podcast #obstetrics #newborn Скачать
Ep 91. Let's talk about Newborn Screening in Alabama #podcast #alabama #newbornscreening #baby Скачать
Ep 91. #sizzle - Let's go back to evidence-based research to change this structure #podcast #newborn Скачать
Ep 90. Who's responsible for providing parents newborn screening information? #podcast #newborns Скачать
Parents need more newborn screening education. #podcast #newbornscreening #awareness #education Скачать
Stop expecting parents to positively respond to outcomes you haven't prepared them for. #podcast Скачать
I'm not a newborn screening expert but I am newborn screening aware #newbornscreening #podcast Скачать
Ep 88. #sizzle - When A New Experience Is Familiar #podcast #trisomy18 #healthcare #trisomy18 Скачать
Ep 88. #sizzle - I was disappointed with the healthcare system #podcast #raredisease #trisomy18 Скачать
Ep 87. #sizzle - What Is Newborn Screening? #podcast #newborn #publichealth #raredisease #trisomy18 Скачать
Ep 87. Our Newborn Was Refused Newborn Screening #podcast #raredisease #newborn #test #trisomy18 Скачать
Ep 87. #sizzle- You Don't Need Newborn Screening, Your Child Is Dying #podcast #raredisease #newborn Скачать
Ep 85. #sizzle - You Have To Be In A Similar Situation To Understand #podcast #inclusion #trisomy18 Скачать
Ep 83. #sizzle - When Accessibility is Inaccessible #podcast #raredisease #accessibility #wheelchair Скачать
Ep 83. #sizzle - Inclusive Gift Shop #podcast #inclusion #giftshop #wheelchair #raredisease #atlanta Скачать
Ep 83. #sizzle - Tell Us About Your Travel Experiences #podcast #travel #raredisease #wheelchair Скачать
Ep 83. #sizzle - Navigating Elijah's Blends While Traveling #podcast #beingrare #raredisease #travel Скачать
Ep 81. Ten Minutes of Sarita - Girl, Where You Been? #podcast #selfcare #mentalhealth #conversation Скачать
Ep 73. Being Rare & Black - A Being Rare #Podcast Rare Disease Day Exclusive #black #raredisease Скачать
Welcome to the E WE Foundation: A Global Healthcare Advocacy Organization #trisomy18 #raredisease Скачать
Ep 63. Know Your Family History - A Health History Conversation Part 2 #health #history #awareness Скачать
Ep 62. Know Your Family History - A Health History Conversation Part 1 #health #history #awareness Скачать
Mental Health Matters: Connecting the Dots #mentalhealth #mentalhealthmatters #awareness #advocacy Скачать
Utilizing Social Health Concepts for Transformative Healthcare Solutions #socialhealth #healthcare Скачать
Using Culturally Appropriate Resources to Influence Health Equity and Access #healthequity #access Скачать
Leveraging Digital Concepts to Advance Accessibility #digitalconcepts #accessibility #patientdata Скачать
Advocacy and the Legislative Landscape #advocacy #legislation #policy #raredisease #state #federal Скачать
Ep 53. One Minute Monday: Patience - When Traditional Timelines Don't Accurately Measure Development Скачать
Moms & Mental Health: The Importance of Self Care #mentalhealth #selfcare #education #motherhood Скачать
Ep 46. Special Mother's Day Edition of the Being Rare Podcast #podcast #raredisease #trisomy18 Скачать
New Beginnings: Welcome to Season 2 of the Being Rare Podcast #podcast #season2 #newbeginnings Скачать
Understanding Parent Leadership: What Is Parent Leadership and Why Is It Important? #education Скачать
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