Канал: Rare Diseases Clinical Research Network (RDCRN)

MGNet Minute Episode #3: Knowing Whether You're Acetylcholine Receptor Antibody Positive

MGNet Minute Episode #3: Knowing Whether You're Acetylcholine Receptor Antibody Positive

MGNet Minute Episode #2: Know Your Antibody

MGNet Minute Episode #2: Know Your Antibody

MGNet Minute: Episode 1

MGNet Minute: Episode 1

Incorporating Rescue Therapy Into the Statistical Analysis of Clinical Trials in Myasthenia Gravis

Incorporating Rescue Therapy Into the Statistical Analysis of Clinical Trials in Myasthenia Gravis

MGNet Webinar: Investigating Immune Mechanisms Underlying Checkpoint Inhibitor Myasthenia Gravis

MGNet Webinar: Investigating Immune Mechanisms Underlying Checkpoint Inhibitor Myasthenia Gravis

MGNet Research Webinar Series: Atypical B Cells in Myasthenia Gravis

MGNet Research Webinar Series: Atypical B Cells in Myasthenia Gravis

MuSK 1000 Study - Myasthenia Gravis Research

MuSK 1000 Study - Myasthenia Gravis Research

MGNet Research Webinar Series: Investigation of CD8 T Cells Immune Signatures in Myasthenia Gravis

MGNet Research Webinar Series: Investigation of CD8 T Cells Immune Signatures in Myasthenia Gravis

Twenty Years of the Rare Diseases Clinical Research Network

Twenty Years of the Rare Diseases Clinical Research Network

Longitudinal Study of Urea Cycle Disorders: Urea Cycle Disorders Consortium

Longitudinal Study of Urea Cycle Disorders: Urea Cycle Disorders Consortium

MGNet Research Webinar Series: Treatment Preferences of Patients with Myasthenia Gravis

MGNet Research Webinar Series: Treatment Preferences of Patients with Myasthenia Gravis

DEIA Guest Speaker: Professional Identity Formation of Minoritized Students and Faculty

DEIA Guest Speaker: Professional Identity Formation of Minoritized Students and Faculty

Building a Community Engagement Model for Rare Disease: A Community Ambassador Approach

Building a Community Engagement Model for Rare Disease: A Community Ambassador Approach

Learning About Congenital Disorders of Glycosylation from a Natural History Study: Christina Lam, MD

Learning About Congenital Disorders of Glycosylation from a Natural History Study: Christina Lam, MD

DEIA Guest Speakers: Reporting Race and Ethnicity and Inclusive Language in Medical Publication

DEIA Guest Speakers: Reporting Race and Ethnicity and Inclusive Language in Medical Publication

How I Got Involved in Advocacy Work for Rare Diseases: Connie Lee, PsyD

How I Got Involved in Advocacy Work for Rare Diseases: Connie Lee, PsyD

How Rare Disease Research Has Impacted My Life: Michelle Fynan, PhD, LMHC

How Rare Disease Research Has Impacted My Life: Michelle Fynan, PhD, LMHC

Why I Got Involved with Rare Disease Research: Siddharth Srivastava, MD

Why I Got Involved with Rare Disease Research: Siddharth Srivastava, MD

Want to Help Advance Rare Diseases Research? Join Our Contact Registry!

Want to Help Advance Rare Diseases Research? Join Our Contact Registry!

Diversity, Equity, Inclusion, Accessibility Webinar: Community Engagement in Translational Research

Diversity, Equity, Inclusion, Accessibility Webinar: Community Engagement in Translational Research

Diversity, Equity, Inclusion, & Accessibility Webinar Series: The Redlining of Healthcare

Diversity, Equity, Inclusion, & Accessibility Webinar Series: The Redlining of Healthcare

How to Join Our Contact Registry

How to Join Our Contact Registry

Join Our Contact Registry

Join Our Contact Registry

CPAG Webinar: The Chan Zuckerberg Initiative's Rare As One Project

CPAG Webinar: The Chan Zuckerberg Initiative's Rare As One Project

CPAG Webinar: Get to Know Global Genes

CPAG Webinar: Get to Know Global Genes

Help Us Discover Hero: Mitchell's Story Of A Rare Genetic Disorder & Clinical Trials Participation

Help Us Discover Hero: Mitchell's Story Of A Rare Genetic Disorder & Clinical Trials Participation

Message on National Eosinophilic Awareness Week: CEGIR Administrative Director

Message on National Eosinophilic Awareness Week: CEGIR Administrative Director

Message on National Eosinophilic Awareness Week: CEGIR Principal Investigator

Message on National Eosinophilic Awareness Week: CEGIR Principal Investigator

CPAG Webinar: Getting to Know the EveryLife Foundation

CPAG Webinar: Getting to Know the EveryLife Foundation

CPAG Webinar: Genetic Alliance "Don't Accept a Seat at the Table, Own the Table!"

CPAG Webinar: Genetic Alliance "Don't Accept a Seat at the Table, Own the Table!"

(Twitter Cut) Who We Are - Rare Diseases Clinical Research Network

(Twitter Cut) Who We Are - Rare Diseases Clinical Research Network

CPAG Webinar: Research, Rare Disease Day & More: Catching Up with NORD

CPAG Webinar: Research, Rare Disease Day & More: Catching Up with NORD

CPAG Webinar: An Introduction to Clinical Trials

CPAG Webinar: An Introduction to Clinical Trials

CPAG Webinar: Working with the FDA in the Conduct of Clinical Trials

CPAG Webinar: Working with the FDA in the Conduct of Clinical Trials

CPAG Webinar: Clinical Trials - Working with your Patient Community

CPAG Webinar: Clinical Trials - Working with your Patient Community

CPAG Webinar: Working with Industry in the Conduct of Clinical Trials 1

CPAG Webinar: Working with Industry in the Conduct of Clinical Trials 1

Rare Disease Day 2021 Patient Panel: How Care and Research Have Changed During COVID 19

Rare Disease Day 2021 Patient Panel: How Care and Research Have Changed During COVID 19

Regulatory Webinar: Human Subject Research Protocols If you write it well, they will come

Regulatory Webinar: Human Subject Research Protocols If you write it well, they will come

Regulatory Webinar: Single IRB Institutional Review Board Presentation & Panel Discussion

Regulatory Webinar: Single IRB Institutional Review Board Presentation & Panel Discussion

Regulatory Webinar: So many procedures, so little time: How to develop an effective schedule

Regulatory Webinar: So many procedures, so little time: How to develop an effective schedule

Who We Are: Rare Diseases Clinical Research Network

Who We Are: Rare Diseases Clinical Research Network

An Update: RDCRN Survey on Impacts of COVID 19 on Rare Disease Patients and Families

An Update: RDCRN Survey on Impacts of COVID 19 on Rare Disease Patients and Families

BVMC Spotlight: Anthony Anzell, PhD

BVMC Spotlight: Anthony Anzell, PhD

BVMC Spotlight: Douglas Marchuk, PhD

BVMC Spotlight: Douglas Marchuk, PhD

NIH Mentored Research (K) Career Development Awards for Clinician Researchers

NIH Mentored Research (K) Career Development Awards for Clinician Researchers

About CEGIR

About CEGIR

Understanding Clinical Research: An Overview for the Rare Disease Patient Community

Understanding Clinical Research: An Overview for the Rare Disease Patient Community

How are Research Participants Protected?

How are Research Participants Protected?

Como se Protegen a Participantes en Estudios

Como se Protegen a Participantes en Estudios

Patient Experience in Clinical Trials for Myasthenia Gravis

Patient Experience in Clinical Trials for Myasthenia Gravis