Канал: Wolfram Syndrome UK

WSUK - A year in review

WSUK - A year in review

TREATWolfram Trial Update - Prof Barrett

TREATWolfram Trial Update - Prof Barrett

What's new in published research, and update on current and future treatment trials

What's new in published research, and update on current and future treatment trials

WSUK - expanding our reach

WSUK - expanding our reach

Therapeutic Development for Wolfram syndrome - Dr F Urano

Therapeutic Development for Wolfram syndrome - Dr F Urano

Update on TREAT Wolfram clinical trial in Europe

Update on TREAT Wolfram clinical trial in Europe

Progress and Progression of Diabetes Mellitus in Wolfram - Dr B Marshall Trim

Progress and Progression of Diabetes Mellitus in Wolfram - Dr B Marshall Trim

Planning for the Future to protect your child - Legal Renaissance

Planning for the Future to protect your child - Legal Renaissance

RNC & BBS presentation

RNC & BBS presentation

Update from Snow Foundation & WS Global Patient Registry

Update from Snow Foundation & WS Global Patient Registry

Abby - Living independently

Abby - Living independently

Abby - How WS helps to build resilience

Abby - How WS helps to build resilience

Abby - Life doesn't end when you're diagnosed with WS

Abby - Life doesn't end when you're diagnosed with WS

Abby - Finding and asking for help

Abby - Finding and asking for help

Clare with Maggie

Clare with Maggie

Clare on the tandem

Clare on the tandem

Clare - Living with a Guide Dog

Clare - Living with a Guide Dog

Clare's - top tips

Clare's - top tips

Clare - Crown Green Bowling for Visually Impaired

Clare - Crown Green Bowling for Visually Impaired

Clare - Tandem cycling

Clare - Tandem cycling

Shane - Living alone with WS

Shane - Living alone with WS

Aya - Using a cane

Aya - Using a cane

Gavin - Fatigue

Gavin - Fatigue

Mr Uddin - Managing my daughter's Diabetes

Mr Uddin - Managing my daughter's Diabetes

Shiffa - "We can do anything other people can do"

Shiffa - "We can do anything other people can do"

Shiffa - Supporting my younger brother with his WS

Shiffa - Supporting my younger brother with his WS

Shiffa - Staying positive at school

Shiffa - Staying positive at school

Shiffa - Managing mental health issues

Shiffa - Managing mental health issues

Shiffa - Living an independent life with vision problems

Shiffa - Living an independent life with vision problems

Shiffa Finding a job

Shiffa Finding a job

Shiffa's - Diagnosis

Shiffa's - Diagnosis

Shiffa - Connecting with another WS person

Shiffa - Connecting with another WS person

Shiffa - Achieving success at college and university

Shiffa - Achieving success at college and university

Ayan - Life at University with WS

Ayan - Life at University with WS

Ayan's top tips

Ayan's top tips

Ayan's Hobbies - origami, reading and hiking

Ayan's Hobbies - origami, reading and hiking

Ayan - Connecting with others through WSUK and accessing support

Ayan - Connecting with others through WSUK and accessing support

A mum's story

A mum's story

Psychology Workshop - Gayle McKerracher - Consultant Clinical Psychologist

Psychology Workshop - Gayle McKerracher - Consultant Clinical Psychologist

Interest in ophthalmology and review of eye findings in Wolfram - Dr Christophe Orssaud

Interest in ophthalmology and review of eye findings in Wolfram - Dr Christophe Orssaud

Novel therapies for Wolfram syndrome Dr Fumihiko Urano

Novel therapies for Wolfram syndrome Dr Fumihiko Urano

$TREATWolfram Update - \Prof Barrett, Dr renuka Dias and Dr Ben Wright$

TREATWolfram Update - \Prof Barrett, Dr renuka Dias and Dr Ben Wright

Loss of Vision in Wolfram Syndrome - Dr Patrick Yu Wai Man

Loss of Vision in Wolfram Syndrome - Dr Patrick Yu Wai Man

Global Patient Registry

Global Patient Registry

WS Global Awareness Day Tracy Lynch WSUK

WS Global Awareness Day Tracy Lynch WSUK

BDB Introduction Video in Urdu

BDB Introduction Video in Urdu

BDB Introduction Video English

BDB Introduction Video English

BDB Introduction Video in Arabic

BDB Introduction Video in Arabic

PROM Wise webinar 29 01 2021

PROM Wise webinar 29 01 2021

Copy of Covid 19 and Vaccinations Update webinar 22 01 2021

Copy of Covid 19 and Vaccinations Update webinar 22 01 2021

Benefits and Grants webinar 11th December 2020

Benefits and Grants webinar 11th December 2020

TREATWolfram Update

TREATWolfram Update

Echo Dot Demo Webinar 02 10 20 v2

Echo Dot Demo Webinar 02 10 20 v2

Optic Nerve Involvement in Wolfram Syndrome - Dr Patrick Yu Wai Man. 26th Sept 2020

Optic Nerve Involvement in Wolfram Syndrome - Dr Patrick Yu Wai Man. 26th Sept 2020

WSUK SaLT Workshop 26th Sept 2020

WSUK SaLT Workshop 26th Sept 2020

WSUK Ophthalmology Benefits and Apps Workshop 26th Sept 2020

WSUK Ophthalmology Benefits and Apps Workshop 26th Sept 2020

Ver2 4 Bladder function in Wolfram Syndrome

Ver2 4 Bladder function in Wolfram Syndrome

WSUK July 3rd Webinar

WSUK July 3rd Webinar

WSUK Webinar 22nd May - Mental Health and Wellbeing

WSUK Webinar 22nd May - Mental Health and Wellbeing

The 2.6 Challenge Campaign explainer

The 2.6 Challenge Campaign explainer

WSUK Webinar 1 Covid-19. 3rd April 2020

WSUK Webinar 1 Covid-19. 3rd April 2020

Prof Tim Barrett - WS conference 2019

Prof Tim Barrett - WS conference 2019

Tamara Hershey PhD, WS Conference 2019

Tamara Hershey PhD, WS Conference 2019

Bess Marshall MD - WS Conference 2019

Bess Marshall MD - WS Conference 2019

Dr Fumi Urano MD, PhD - 2019 conference

Dr Fumi Urano MD, PhD - 2019 conference

WSUK 2018 Legal Talk

WSUK 2018 Legal Talk

WSUK 2018 Prof. Raj Gupta

WSUK 2018 Prof. Raj Gupta

WSUK 2018 Professor Tim Barrett

WSUK 2018 Professor Tim Barrett

WSUK 2018 Dr Denise Williams

WSUK 2018 Dr Denise Williams

Our Journey from Pre Diagnosis to Clinical Trial

Our Journey from Pre Diagnosis to Clinical Trial

Shane Roberts

Shane Roberts

Wolfram Syndrome & the Bladder - Dr Malcolm Lewis

Wolfram Syndrome & the Bladder - Dr Malcolm Lewis

WS Conference 2017 - Prof Tim Barrett - Clinical Trial Update

WS Conference 2017 - Prof Tim Barrett - Clinical Trial Update

WS Conference 2017 - Stephanie Snow Gebel with USA Trial Update

WS Conference 2017 - Stephanie Snow Gebel with USA Trial Update

WS Conference 2017 - Kristian Brock talking Clinical Trial

WS Conference 2017 - Kristian Brock talking Clinical Trial

WS Conference 2017 Dr Patrick Yu Wai Man

WS Conference 2017 Dr Patrick Yu Wai Man

WSUK 2016 - Dr Fumi Urano - Management and Treatment of WS

WSUK 2016 - Dr Fumi Urano - Management and Treatment of WS

wsuk 2016 conference - Prof Barrett - WS Research Update

wsuk 2016 conference - Prof Barrett - WS Research Update

WSUK 2013 Prof Tim Barrett - WS clinical services

WSUK 2013 Prof Tim Barrett - WS clinical services

WSUK 2013 Prof Tim Barrett - Research update

WSUK 2013 Prof Tim Barrett - Research update

WSUK 2013 Nolwenn Le Floche - President of th French WS Association

WSUK 2013 Nolwenn Le Floche - President of th French WS Association

WSUK 2013 Guy Lenaers - Institute of Neurosciences Montpelier, France

WSUK 2013 Guy Lenaers - Institute of Neurosciences Montpelier, France

wsuk holiday home

wsuk holiday home

steyning rebels cricket club tour to alderney may 2016

steyning rebels cricket club tour to alderney may 2016

wsuk 2015. Tracy Lynch CEO of WSUK with a charity update

wsuk 2015. Tracy Lynch CEO of WSUK with a charity update

wsuk 2015 Dr Larissa Kerecuk - Rare Disease Centre at Birmingham Children's Hospital

wsuk 2015 Dr Larissa Kerecuk - Rare Disease Centre at Birmingham Children's Hospital

wsuk 2015 Prof Tim Barrett - Developing treatments for WS in Birmingham

wsuk 2015 Prof Tim Barrett - Developing treatments for WS in Birmingham

wsuk 2015 Dr Fumi Urano - Management and Treatment of WS

wsuk 2015 Dr Fumi Urano - Management and Treatment of WS

wsuk 2015 Dr Patrick Yu Wai Man - WS and the Eye

wsuk 2015 Dr Patrick Yu Wai Man - WS and the Eye

wsuk 2015 Prof Tim Barrett and Prof Karen Morrison -Update on WS Clinical services

wsuk 2015 Prof Tim Barrett and Prof Karen Morrison -Update on WS Clinical services

wsuk 2015 conference talk 1

wsuk 2015 conference talk 1

synthony 101 test movie 2

synthony 101 test movie 2

101 gig test 1.movie one

101 gig test 1.movie one

WSUK 2014 Prof Tim Barrett - developing treatments for WS in Birmingham

WSUK 2014 Prof Tim Barrett - developing treatments for WS in Birmingham

WSUK 2014 - Dr Fumi Urano. Patient based theraputics for Wolfram Syndrome

WSUK 2014 - Dr Fumi Urano. Patient based theraputics for Wolfram Syndrome

WSUK 2014. Professors Tim Barrett and Karen Morrison on the Specialised service for Wolfram Syndrome

WSUK 2014. Professors Tim Barrett and Karen Morrison on the Specialised service for Wolfram Syndrome

WSUK 2014 - Dr Nicola Beer. What happens to my skin Biopsy

WSUK 2014 - Dr Nicola Beer. What happens to my skin Biopsy

Copy of WSUK Charity Roadtrip 2014 B

Copy of WSUK Charity Roadtrip 2014 B

WSUK Charity Roadtrip 2014 B

WSUK Charity Roadtrip 2014 B

Rachel re WHS

Rachel re WHS

Synthony 101 Kids in America St Pauls

Synthony 101 Kids in America St Pauls

A Night at the 80's Night 1

A Night at the 80's Night 1

Parent Panel

Parent Panel

wolfram syndrome dec 2013

wolfram syndrome dec 2013