Zainab Alani on diagnostic delays, intersectionality, and educational gaps in rare disease medicine Скачать
Patient Partnership Webinar: The Patient Experience - partnering to improve hospital services Скачать
Patient Partnership Pills: ERN NMD Rehabilitation Summer School, why is this a good practice? Скачать
EURORDIS Partnership Webinars: Rare Disease National Networks & ERN National Coordination Hubs Скачать
Launch of the Rare Barometer Diagnosis Survey: strengthen your advocacy work with robust figures! Скачать
EURORDIS Black Pearl Awards 2021 - David Maria Sassoli, President of the EP, Honorary chair BPA2021 Скачать
EURORDIS European RD Leadership Award 2021 - Victoria Hedley, Dr. Enrique Terol, Dr. Birutė Tumienė Скачать
