Канал: FD Foundation Inc

Navigating Clinical Trials -- an FD/MAS Alliance Monthly Community Meet-Up

Navigating Clinical Trials -- an FD/MAS Alliance Monthly Community Meet-Up

Faces of FD/MAS - Beatriz's Story

Faces of FD/MAS - Beatriz's Story

Faces of FD/MAS: William's Story

Faces of FD/MAS: William's Story

Peer Reviewed Medical Research Program Overview 2024

Peer Reviewed Medical Research Program Overview 2024

Team FD/MAS turns 10!

Team FD/MAS turns 10!

Team FD/MAS Research Update 2024

Team FD/MAS Research Update 2024

Faces of FD/MAS - Nikki's Story

Faces of FD/MAS - Nikki's Story

Faces of FD/MAS - Dennis's Story

Faces of FD/MAS - Dennis's Story

Advances in Craniofacial Surgery – Dr. Kristen Pan

Advances in Craniofacial Surgery – Dr. Kristen Pan

Bisphosphonates: Update from the ProFiDys Study – Dr. Roland Chapurlat

Bisphosphonates: Update from the ProFiDys Study – Dr. Roland Chapurlat

Tocilucimab: Summary of the TociDys Study – Dr. Roland Chapurlat

Tocilucimab: Summary of the TociDys Study – Dr. Roland Chapurlat

State of FD/MAS Research- 2023 FD/MAS Community Conference and ICFDMAS meeting

State of FD/MAS Research- 2023 FD/MAS Community Conference and ICFDMAS meeting

Faces of FD/MAS -- Camryn Berry

Faces of FD/MAS -- Camryn Berry

2023 FD/MAS Community Conference Recap

2023 FD/MAS Community Conference Recap

FD/MAS and Research - January 2023

FD/MAS and Research - January 2023

Rehabilitation for Daily Life Function for Persons with FD/MAS

Rehabilitation for Daily Life Function for Persons with FD/MAS

FD/MAS Alliance Research Ready

FD/MAS Alliance Research Ready

Optimizing your In-Person and Telehealth Visits

Optimizing your In-Person and Telehealth Visits

Disability Benefits 102

Disability Benefits 102

Disability Benefits 101

Disability Benefits 101

Launch Meeting for the Interational Consortium for FD/MAS

Launch Meeting for the Interational Consortium for FD/MAS

Meet the International Consortium for FD/MAS

Meet the International Consortium for FD/MAS

FD/MAS and Reproductive Health

FD/MAS and Reproductive Health

FD/MAS Beyond 40

FD/MAS Beyond 40

Craniofacial Care of Fibrous Dysplasia/McCune-Albright syndrome

Craniofacial Care of Fibrous Dysplasia/McCune-Albright syndrome

FD/MAS and Bone Pain

FD/MAS and Bone Pain

FD/MAS 101: The basics of fibrous dysplasia and McCune-Albright syndrome

FD/MAS 101: The basics of fibrous dysplasia and McCune-Albright syndrome

Highlights from the 2021 FD/MAS Research Update

Highlights from the 2021 FD/MAS Research Update

"Hope is a reasonable thing to have." Dr. Mike Collins of the NIH on how Team FD/MAS research

"Hope is a reasonable thing to have." Dr. Mike Collins of the NIH on how Team FD/MAS research

Perspectives on Strength

Perspectives on Strength

COVID-19 and FD/MAS a 1 year Update

COVID-19 and FD/MAS a 1 year Update

COVID 19 and FD/MAS

COVID 19 and FD/MAS

Pediatric Orthopedic Care of FD/MAS and choosing a Surgeon

Pediatric Orthopedic Care of FD/MAS and choosing a Surgeon

A New Clinical Pathway for Fd/MAS care

A New Clinical Pathway for Fd/MAS care

I am Julia from Brisbane and I will #BreakTheSilence

I am Julia from Brisbane and I will #BreakTheSilence

A quick flip through the FD/MAS Toolkit

A quick flip through the FD/MAS Toolkit

I am Jennifer from Boston and I will #breakthesilence

I am Jennifer from Boston and I will #breakthesilence

I'm Lauren Ruotolo from New York City and I will #breakthesilence

I'm Lauren Ruotolo from New York City and I will #breakthesilence

I'm Rylan Pederson and I will #breakthesilence

I'm Rylan Pederson and I will #breakthesilence

I'm Skye Miu Steppe and I will #breakthesilence

I'm Skye Miu Steppe and I will #breakthesilence

I'm Lauren from Clarksville TN and I will #breakthesilence

I'm Lauren from Clarksville TN and I will #breakthesilence

FDF's Not So Secret Plan

FDF's Not So Secret Plan

FDF 2017 Research Panel

FDF 2017 Research Panel

FDF 2017 Craniofacial Care

FDF 2017 Craniofacial Care

FDF 2017 Pain Panel

FDF 2017 Pain Panel

FDF 2017 Endocrine Panel

FDF 2017 Endocrine Panel

FDF 2017 Path to Progress

FDF 2017 Path to Progress

FDF 2017 Orthopedic Care

FDF 2017 Orthopedic Care

FD/MAS: We Need Your Help

FD/MAS: We Need Your Help

FD/MAS and Rare Disease Day 2017 - With research, the possibilities are limitless!

FD/MAS and Rare Disease Day 2017 - With research, the possibilities are limitless!

Why do we need the FD/MAS Patient Registry?

Why do we need the FD/MAS Patient Registry?

How to Join the FD/MAS Patient Registry

How to Join the FD/MAS Patient Registry

Welcome & Introduction to Fibrous Dysplasia

Welcome & Introduction to Fibrous Dysplasia

Surgical Management of Fibrous Dysplasia (children)

Surgical Management of Fibrous Dysplasia (children)

Orthopedic Management of Fibrous Dysplasia (Adults)

Orthopedic Management of Fibrous Dysplasia (Adults)

Craniofacial (ENT) Care of Fibrous Dysplasia

Craniofacial (ENT) Care of Fibrous Dysplasia

Craniofacial Fibrous Dysplasia and Cherubism

Craniofacial Fibrous Dysplasia and Cherubism

Fibrous Dysplasia: Review of Research and Potential Future Treatments

Fibrous Dysplasia: Review of Research and Potential Future Treatments

Patient Registry Initiatiave

Patient Registry Initiatiave

Fibrous Dysplasia and Integrative Pain Approaches

Fibrous Dysplasia and Integrative Pain Approaches

Fibrous Dysplasia, Pain and Psychological Treatment

Fibrous Dysplasia, Pain and Psychological Treatment

Bisphosphonates and Denosumab AND Endocrine Issues

Bisphosphonates and Denosumab AND Endocrine Issues

Integrative Medical Approach to Fibrous Dysplasia

Integrative Medical Approach to Fibrous Dysplasia

Rehabilitation Strategies to Address Physical Disabilities in MAS/FD

Rehabilitation Strategies to Address Physical Disabilities in MAS/FD

FD from Both Sides of the Knife; An Orthopedic Surgeon with FD

FD from Both Sides of the Knife; An Orthopedic Surgeon with FD

Unstoppable with FD/MAS

Unstoppable with FD/MAS

FD Foundation Patient & Family Conference 2014: Speaker Introductions

FD Foundation Patient & Family Conference 2014: Speaker Introductions