Канал: Genetic Alliance UK

CONCORD study findings

CONCORD study findings

Shining a light on Stevens-Johnson syndrome

Shining a light on Stevens-Johnson syndrome

Rare Conditions: The Stories Behind the Stats

Rare Conditions: The Stories Behind the Stats

Louise Fish Interview – Together Caring for Rare Disease

Louise Fish Interview – Together Caring for Rare Disease

Homozygous Familial Hypercholesterolaemia - Together Caring for Rare Disease

Homozygous Familial Hypercholesterolaemia - Together Caring for Rare Disease

Medscape Education Global – Together Caring for Rare Disease

Medscape Education Global – Together Caring for Rare Disease

Pfizer – Together Caring for Rare Disease

Pfizer – Together Caring for Rare Disease

Bionical Emas – Together Caring for Rare Disease

Bionical Emas – Together Caring for Rare Disease

PTC Therapeutics – Together Caring for Rare Disease

PTC Therapeutics – Together Caring for Rare Disease

Coordinating Care – Together Caring for Rare Disease

Coordinating Care – Together Caring for Rare Disease

Understanding Rare Disease – Together Caring for Rare Disease

Understanding Rare Disease – Together Caring for Rare Disease

Volv Global – Together Caring for Rare Disease

Volv Global – Together Caring for Rare Disease

Takeda

Takeda

The University of Oxford – Together Caring for Rare Disease

The University of Oxford – Together Caring for Rare Disease

Coordinating Care – Together Caring for Rare Disease

Coordinating Care – Together Caring for Rare Disease

Introducing ‘Together Caring for Rare Disease’

Introducing ‘Together Caring for Rare Disease’

TMC Pharma Services – Together Caring for Rare Disease

TMC Pharma Services – Together Caring for Rare Disease

Together Caring for Rare Disease – Full programme

Together Caring for Rare Disease – Full programme

Together Caring for Rare Disease – Official trailer

Together Caring for Rare Disease – Official trailer

Chiesi

Chiesi

Sanofi

Sanofi

Kyowa Kirin

Kyowa Kirin

Rare Disease Day 2022 – Four videos

Rare Disease Day 2022 – Four videos

Highlights of our programme, 'Shining a light on rare conditions'

Highlights of our programme, 'Shining a light on rare conditions'

‘Shining a Light on Rare Condition’ – Genetic Alliance UK's 2022 full programme.

‘Shining a Light on Rare Condition’ – Genetic Alliance UK's 2022 full programme.

Albireo

Albireo

Biocryst

Biocryst

Costello

Costello

Genomics England

Genomics England

Goodbye

Goodbye

Health Education England

Health Education England

HRA Pharma studio interview – 'Shining a Light on Rare Conditions'

HRA Pharma studio interview – 'Shining a Light on Rare Conditions'

Intro

Intro

News Item

News Item

Studio IV

Studio IV

The Wellcome Centre for Mitochondrial Research 'shining a light on rare conditions' Original

The Wellcome Centre for Mitochondrial Research 'shining a light on rare conditions' Original

Dear Mellissa - Rare Disease Day official video #4

Dear Mellissa - Rare Disease Day official video #4

Dear Jace - Rare Disease Day 2022 official video #3

Dear Jace - Rare Disease Day 2022 official video #3

Dear David - Official Rare Disease Day 2022 official video #2

Dear David - Official Rare Disease Day 2022 official video #2

Dear Ayaan: Rare Disease Day 2022 official video #1

Dear Ayaan: Rare Disease Day 2022 official video #1

Shining a light on rare conditions trailer 2022

Shining a light on rare conditions trailer 2022

Show me your rare challenge

Show me your rare challenge

Rare Disease Day 2021 UK's Official Video

Rare Disease Day 2021 UK's Official Video

Interview with winners 'Journey of Hope'

Interview with winners 'Journey of Hope'

Sharon Hodgson MP at Rare Film Festival 2020

Sharon Hodgson MP at Rare Film Festival 2020

Go Make Memories by Niemann-Pick UK

Go Make Memories by Niemann-Pick UK

Getting Together with Duchenne: The Power of Gaming

Getting Together with Duchenne: The Power of Gaming

Rare Disease Day 2020

Rare Disease Day 2020

Illuminate the rare reality

Illuminate the rare reality

Ian's rare reality

Ian's rare reality

Nicholas' rare reality

Nicholas' rare reality

Jeff's rare reality

Jeff's rare reality

Jack's rare reality

Jack's rare reality

Tom's Story

Tom's Story

Patients' experiences of rare diseases [Trailer]

Patients' experiences of rare diseases [Trailer]

Zoe's story

Zoe's story

Luke's story

Luke's story

Our family: living with a rare condition (full)

Our family: living with a rare condition (full)

Our family: living with a rare condition (trailer)

Our family: living with a rare condition (trailer)

Implementation plans for England published

Implementation plans for England published

Rebecca's story

Rebecca's story

Lucy's story

Lucy's story

Ellie's story

Ellie's story

Drew's story

Drew's story

Neil's Story

Neil's Story

Imogen's Story

Imogen's Story

Rachael's Story

Rachael's Story