Канал: National Fragile X Foundation

Hope for the Future

Hope for the Future

Gregg Harper on Advocacy Day 2022

Gregg Harper on Advocacy Day 2022

Issues in Sexuality: One Idea for Women

Issues in Sexuality: One Idea for Women

Issues in Sexuality: Masturbation

Issues in Sexuality: Masturbation

Employment: Developing Work Attributes

Employment: Developing Work Attributes

Transportation: Walking or Riding a Bike to Work

Transportation: Walking or Riding a Bike to Work

Social Skills: Anxiety Issues

Social Skills: Anxiety Issues

Social Skills: Sensory Issues

Social Skills: Sensory Issues

Social Skills: Talking on the Telephone

Social Skills: Talking on the Telephone

Behavior Issues: When Agitation Occurs

Behavior Issues: When Agitation Occurs

Behavior Issues: Mood Disorders

Behavior Issues: Mood Disorders

X Strides 2021 Slideshow.mp4

X Strides 2021 Slideshow.mp4

X Strides - How to Create a Facebook Fundraiser

X Strides - How to Create a Facebook Fundraiser

How is Fragile X Inherited

How is Fragile X Inherited

Fragile X Association of Georgia

Fragile X Association of Georgia

A post-election message from Gregg Harper

A post-election message from Gregg Harper

X Strides 2020 Virtual Slideshow

X Strides 2020 Virtual Slideshow

How to Wear a Mask: Helping Individuals with Fragile X Syndrome

How to Wear a Mask: Helping Individuals with Fragile X Syndrome

SSAN Dance Part 2

SSAN Dance Part 2

SSAN Dance Part 2

SSAN Dance Part 2

Fragile X Self-Advocates/Siblings Dance 2020

Fragile X Self-Advocates/Siblings Dance 2020

Glass

Glass

CBD Discussion with Dr Craig Erickson

CBD Discussion with Dr Craig Erickson

NFXF 2020 Virtual Graduation

NFXF 2020 Virtual Graduation

The 2022 NFXF Conference Announcement

The 2022 NFXF Conference Announcement

Sophia James is going to speak at the 17th NFXF International Fragile X Conference

Sophia James is going to speak at the 17th NFXF International Fragile X Conference

Female Power to Fight COVID-19 with Dr. Marcia Braden

Female Power to Fight COVID-19 with Dr. Marcia Braden

2018 Conference EEG Biomarkers

2018 Conference EEG Biomarkers

2018 Conference Ripple Effect

2018 Conference Ripple Effect

Adult Issues in Fragile X Syndrome

Adult Issues in Fragile X Syndrome

X - A New Hope

X - A New Hope

Live Q&A about the Conference Virtual Series

Live Q&A about the Conference Virtual Series

Announcing the 17th NFXF International Fragile X Conference Virtual Series.

Announcing the 17th NFXF International Fragile X Conference Virtual Series.

How to Prepare for a Telehealth Visit

How to Prepare for a Telehealth Visit

COVID-19/Coronavirus Social Story

COVID-19/Coronavirus Social Story

Supporting Your Child with Fragile X Syndrome During Special Times

Supporting Your Child with Fragile X Syndrome During Special Times

The Unregulated Life of COVID-19 is No Laughing Matter

The Unregulated Life of COVID-19 is No Laughing Matter

How Do We Cope with the Current Circumstances

How Do We Cope with the Current Circumstances

How To's of Sensory Diets in Fragile X Syndrome

How To's of Sensory Diets in Fragile X Syndrome

Mindfulness and Me Webinar

Mindfulness and Me Webinar

My Child is Home... Now What? Play Skills

My Child is Home... Now What? Play Skills

My Child is Home.. Now What? Managing Behavior

My Child is Home.. Now What? Managing Behavior

My Child is Home... Now What?? Keeping a Routine

My Child is Home... Now What?? Keeping a Routine

Conversation with Hilary recording

Conversation with Hilary recording

Two Minute Tip on Participating in Clinical Trials and Studies

Two Minute Tip on Participating in Clinical Trials and Studies

Medication Use in Fragile X Syndrome 2019

Medication Use in Fragile X Syndrome 2019

Special Needs Estate Planning

Special Needs Estate Planning

Guardianship for Special Needs Individuals and Caregivers—A Free NFXF Webinar

Guardianship for Special Needs Individuals and Caregivers—A Free NFXF Webinar

Joshua’s Mom on Participating in Fragile X Clinical Trials

Joshua’s Mom on Participating in Fragile X Clinical Trials

NFXF Webinar: Participating in Studies and Trials

NFXF Webinar: Participating in Studies and Trials

Fragile X families ring the NYSE Closing Bell on 7/5/2019

Fragile X families ring the NYSE Closing Bell on 7/5/2019

Happy Father's Day Fragile X Dads

Happy Father's Day Fragile X Dads

Medication for Individuals with Fragile X Syndrome

Medication for Individuals with Fragile X Syndrome

NeuroNext Trial Q&A

NeuroNext Trial Q&A

Siblings and Self-Advocates Dance at the NFXF Conference

Siblings and Self-Advocates Dance at the NFXF Conference

Advice for newly diagnosed families

Advice for newly diagnosed families

How you found out about Fragile X

How you found out about Fragile X

Males with Fragile X Syndrome at the NFXF Conference

Males with Fragile X Syndrome at the NFXF Conference

NFXF Webinar: Fragile X Genetics - Mosaicism

NFXF Webinar: Fragile X Genetics - Mosaicism

Medication for Individuals with Fragile X Syndrome (11-2-2017)

Medication for Individuals with Fragile X Syndrome (11-2-2017)

Using ABLE Act and Special Needs Fairness Act to Establish Financial Stability and Independence

Using ABLE Act and Special Needs Fairness Act to Establish Financial Stability and Independence

Autism Spectrum Disorder in Fragile X Syndrome

Autism Spectrum Disorder in Fragile X Syndrome

Clinical Research Trials from Start to Finish

Clinical Research Trials from Start to Finish

Strategies for Executive Functioning Deficits in Females with Fragile X Syndrome

Strategies for Executive Functioning Deficits in Females with Fragile X Syndrome

Anything for Fragile X - So 2014

Anything for Fragile X - So 2014

Genetics 101: Navigating the Many Twists and Turns of Fragile X Inheritance

Genetics 101: Navigating the Many Twists and Turns of Fragile X Inheritance

Toilet Training Milestones in Fragile X Syndrome

Toilet Training Milestones in Fragile X Syndrome

Independent Living with Anita Inz

Independent Living with Anita Inz

Adult Living Situations and Fragile X

Adult Living Situations and Fragile X

FXS Autism and Behavior with Mouse and Tracy: Valentine's Day Edition

FXS Autism and Behavior with Mouse and Tracy: Valentine's Day Edition

Individualized Education Programs with Dr Vicki Sudhalter

Individualized Education Programs with Dr Vicki Sudhalter

Fragile X Premutation w Dr. Randi Hagerman

Fragile X Premutation w Dr. Randi Hagerman

Senator Chris Murphy, Connecticut

Senator Chris Murphy, Connecticut

Transitions Into Adulthood with Laurie Yankowitz, EdD

Transitions Into Adulthood with Laurie Yankowitz, EdD

Fragile X Dance Crew @ 15th International Fragile X Conference

Fragile X Dance Crew @ 15th International Fragile X Conference

Let 'Em Know: A Fragile X Awareness Month Event!

Let 'Em Know: A Fragile X Awareness Month Event!

Lets Talk Married with (Fragile X) Children

Lets Talk Married with (Fragile X) Children

Let's Talk FXS, Autism & Behavior with Tracy & Mouse

Let's Talk FXS, Autism & Behavior with Tracy & Mouse

Let's Talk Fragile X Premutation Carriers and Health

Let's Talk Fragile X Premutation Carriers and Health

Working to Restore Balance to Brain Function in FXS [Trofinetide (NNZ-2566, Neuren Pharmaceuticals)]

Working to Restore Balance to Brain Function in FXS [Trofinetide (NNZ-2566, Neuren Pharmaceuticals)]

FXTAS: Who, What, When, How? By Deborah Hall, MD PhD

FXTAS: Who, What, When, How? By Deborah Hall, MD PhD

Let's Talk FXTAS

Let's Talk FXTAS

Fragile X feature on Yahoo News with Katie Couric

Fragile X feature on Yahoo News with Katie Couric

Magic Arrows by Ben Moelis

Magic Arrows by Ben Moelis

Fragile X mentioned on General Hospital

Fragile X mentioned on General Hospital

Let's Talk Behavior and FXS

Let's Talk Behavior and FXS

"I'll take Fragile for $400 please!" Do you know the answer?

"I'll take Fragile for $400 please!" Do you know the answer?

Let's Talk! Back to School

Let's Talk! Back to School

Cindi Rogers - NFXF Forward Thinking

Cindi Rogers - NFXF Forward Thinking

Riding a Bus Independently

Riding a Bus Independently

Employment: Finding a Job Building on Strengths & Interests

Employment: Finding a Job Building on Strengths & Interests

National Fragile X Foundation - A Mother's Touch on Mother's Day 2012

National Fragile X Foundation - A Mother's Touch on Mother's Day 2012

Happy Valentine's Day - National Fragile X Foundation

Happy Valentine's Day - National Fragile X Foundation

National Fragile X Foundation - Our Favorite Things

National Fragile X Foundation - Our Favorite Things

National Fragile X Foundation - Thankful for

National Fragile X Foundation - Thankful for

National Fragile X Foundation - Fragile X Awareness Day 2011

National Fragile X Foundation - Fragile X Awareness Day 2011

National Fragile X Foundation - Happy Father's Day 2011

National Fragile X Foundation - Happy Father's Day 2011

National Fragile X Foundation - Happy Mother's Day 2011

National Fragile X Foundation - Happy Mother's Day 2011

Our Fragile X World

Our Fragile X World

National Fragile X Foundation's Advocacy Day 2012: Save the Date!

National Fragile X Foundation's Advocacy Day 2012: Save the Date!

Fragile X Advocacy Day 2011

Fragile X Advocacy Day 2011

Season's Greetings from the NFXF

Season's Greetings from the NFXF

Fragile X Advocacy Day 2010

Fragile X Advocacy Day 2010

National Fragile X Foundation 25th Anniversary

National Fragile X Foundation 25th Anniversary