This film has been entered into the 2016 Neuro Film Festival at NeuroFilmFestival.com.
Ernie's Story is a short film focusing on the need for awareness and research for Creutzfeldt-Jakob Disease. A disease that is considered rare and therefore receives little attention or funding for research. Currently there are 7 states in the US that does not mandate CJD as a reportable disease. This not only effects reported cases, it hurts chances for research through autopsies. CJD is a disease that is devastating and has no treatment or cure. Patients on an average live less than a year after initial symptoms. This film focuses on Ernie Donahue that passed away from CJD last year at the young age of 41. A gentle, kind man that received the greatest joy from helping others. We hope that hearing Ernie's story, his legacy for helping others will continue on by creating awareness. We hope that not only will all 50 states join the efforts for research but one day find a cure.
