With more than 20 years of professional experience in health systems leadership, Sarita Edwards started the E.WE Foundation after her son, Elijah, was diagnosed with #edwardssyndrome, a rare genetic disease. Watch Sarita’s transformation as she shares how she has expanded her organization to ensuring patient communities have equitable access to quality healthcare, mental health, health and financial literacy and disease education as part of our #RAREis program dedicated to elevating the voices, faces and experiences of the #raredisease community.
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