On Monday, November 15, during the Children’s Tumor Foundation 2021 National Gala, Eddie was honored as the 2022 NF Ambassador. This award is bestowed upon an individual with NF to recognize their courage living with the disorder, their personal efforts to further the Foundation's goals of research, public awareness, and patient support.
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Eddie was diagnosed with NF at just one-month-old. He was born with an optic nerve glioma behind his left eye leading to it being removed at 3 years old. Since then he has had well over 20 procedures but never let that stop him from achieving all he has to this day.
Eddie has run in 14 half marathons, 11 of which have been to raise funds for NF, and the Chicago Marathon. With these efforts, he has raised over $130,000 to find a cure for NF. On top of that, he is also involved in the Children’s Tumor Foundation’s Volunteer Leadership Council and Junior Board.
What is the Children's Tumor Foundation?
Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors.
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