This video aims to shed light on some of the unknowns of direct-to-consumer (DTC) genetic testing. After sending a sample of saliva to the lab, what happens to the sample? How are specific gene markers detected? Although often used to uncover ancestry and potential health implications, DTC genetic testing poses a privacy risk not only to the individual but to their family as well. At the end of this video, you’ll be wondering if it's worth spitting in that tube.
This video was made by the McMaster Demystifying Medicine students Ebuka, Katie, Foluso and Layna.
Copyright McMaster University 2019.
References:
Phillips, A. M. (2016). Only a click away—DTC genetics for ancestry, health, love… and more: A view of the business and regulatory landscape. Applied & translational genomics, 8, 16-22.
What is Genetic Testing? (n.d.). Retrieved from [ Ссылка ]
Huang, H., & Bashir, M. (2015). Direct-to-Consumer genetic testing: Contextual privacy predicament. Proceedings of the Association for Information Science and Technology, 52(1), 1-10. doi:10.1002/pra2.2015.145052010050
Bill S-201. (n.d.). Retrieved from [ Ссылка ]
The Genetic Information Nondiscrimination Act of 2008. (n.d.). Retrieved from [ Ссылка ]
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