In partnership with Brain Canada, Dementia Talks! Canada is a new webinar series focusing on conversations on topics relevant to dementia.

In this conversation, "Growing the Conversation on Young Onset Dementia", four people with personal and/or research experiences with young onset dementia in Canada share their knowledge, stories and perspectives.

Timestamps:
00:00 Webinar start
00:53 Introduction
04:15 Panellist introductions
06:45 Mario's story with dementia
16:11 Dr. Masellis talks about his interest in young onset dementia research:
20:32 Natasha talks about her family's experiences with young onset dementia:
27:49 Camryn talks about being a young caregiver
30:45 What should Canadians know about young onset dementia?
35:28 What is the most urgent issue regarding young onset dementia in research?
43:00 Thoughts on how research should be directed to help people living with young onset dementia
46:15 Some of the latest findings in research on young onset dementia:
50:03 Q&A session:
58:02 Closing notes:

Here is some more information about each of the panellists:

Mario Gregorio, Student Mentor @ UBC and Simon Fraser University

Mario Gregorio is a passionate advocate to create awareness, reduce stigma and help educate the public about dementia. He is a mentor for students at the University of British Columbia and Simon Fraser University to help them understand the sensitivities of people living with the disease.

Mario is a member of several provincial and municipal initiatives to help create a dementia-friendly community. He enjoys swimming, walking and taking pictures.

Dr. Mario Masellis, Clinical Scientist / Assistant Professor @ Sunnybrook Research Institute / University of Toronto

Dr. Masellis is a clinician-scientist at the Sunnybrook Research Institute and an assistant professor within the division of neurology at the University of Toronto. Clinically, he is a neurologist with expertise in the diagnosis and treatment of early-onset dementias, including young onset dementia, as well as dementias associated with movement disorders.

Dr. Masellis has training in four main research areas: Cognitive and movement disorders, neurology, pharmacology, and genomics and neuroimaging. His current research focus is on the characterization of the genetics, neuropsychological, neuroimaging and pathological features of atypical neurodegenerative dementias.

Natasha Jacobs, Advisory Group Lead @ Alzheimer Society of Canada

Natasha’s grandfather was diagnosed with dementia at the age of 62, and she was an essential advocate for her family during that stage of his life. Natasha has since gone on to spend more than 10 years working with those who live with a form of dementia, as well as their care partners.

After her studies in gerontology, Natasha became a transition worker and family counsellor in Ottawa, working with over 70 families, providing counselling and advocacy from diagnosis through to admission in long-term care and beyond.

Camryn Berry, Knowledge Transfer and Exchange Associate @ Alzheimer Society of Canada

Camryn Berry is a Knowledge Transfer and Exchange Associate at the Alzheimer Society of Canada. She completed a Master of Science in Public Health and Health Systems at the University of Waterloo. Camryn’s research focused on the experiences of adult child caregivers of people living with young onset dementia.

Camryn has previously worked on projects at the Schlegel-UW Research Institute for Aging, the Murray Alzheimer Research and Education Program and the Centre for Addiction and Mental Health. Camryn is an advocate for expanding the services and supports offered to young caregivers and people living with young onset dementia.

More about the Alzheimer Society of Canada

The Alzheimer Society is Canada’s leading nationwide health charity for people living with Alzheimer's disease and other dementias. Active in communities across Canada, the Society provides information, programs and services to those living with a diagnosis and their caregivers.

The Alzheimer Society Research Program is Canada’s leading funder of research into better understanding the causes of dementia, improving treatment and care, and towards finding cures.

Visit the Alzheimer Society of Canada at [ Ссылка ]

More about Brain Canada

Brain Canada plays a unique and invaluable role as a national convenor of the community of those who support and advance brain research.

A greater understanding of how the brain works will contribute to the prevention, diagnosis, treatment and cure of disorders of the brain, thereby improving the health outcomes of Canadians.

Brain Canada’s main areas of focus are fundraising, granting and strengthening the brain research community.

Visit Brain Canada at [ Ссылка ]

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