Science knows shockingly little about menstrual health. But now, endometriosis patients are changing that.

It’s estimated that about one in 10 people who menstruate suffer from endometriosis, which occurs when tissue that grows in the uterus migrates to other parts of the body, becomes inflamed in response to cyclical hormonal changes and forms painful lesions.

One recent study put the cost per patient in the year following diagnosis at more than $15,000, and that doesn’t even account for school missed and work opportunities delayed. There is still no cure.

In the fourth episode of Scientific American’s documentary series A Question of Sex, we meet a data scientist and endometriosis patient who is working to fill those stark gaps.

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