Summary: Learn about complications that can arise early and long-term after a pediatric bone marrow transplant and how to help your child transition to adult care.
A pediatric bone marrow transplant can cure a child’s disease, but it can also create a number of physical, emotional and financial issues that need to be addressed, even when the child becomes an adult. This presentation discusses common challenges children face after transplant, and strategies to provide them with a good quality of life long-term.

Presenter: Robert Hayashi MD, Professor of Pediatrics in the Division of Pediatric Hematology/Oncology, St. Louis Children's Hospital, Washington University School of Medicine
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To read the transcript, go to: [ Ссылка ]

Highlights:

- A bone marrow, stem cell or cord blood transplant can cause health problems for survivors, even decades after transplant.
- A survivorship plan that details a child’s past treatments, drugs and therapies received during transplant, and tests that need to be done life-long after transplant is important to optimize the child’s long-term health and happiness.
- Survivors of a childhood transplant may experience emotional and intellectual difficulties as they grow older, which can impact educational and employment options. Planning early to help a child secure a good job and health insurance is important.

Presented at the 2021 Celebrating a Second Chance at Life Virtual Symposium, April 17-23, 2021
Presentation is 43 minutes long with 11 minutes of Q & A.

Key Points:

(01:11) Over 3,000 bone marrow transplants are performed each year for children who have a blood disorder.

(02:22) A bone marrow transplant can disrupt a child’s physical, emotional and intellectual growth.

(08:46) Predicting possible late effects must take into account the effect of prior therapies as well the bone marrow transplant

(10:04) Thyroid disease is a common late effect after transplant.

(12:18) Long-term use of steroids after transplant can weaken bones and alter the blood supply to joints.

(14:39) Radiation, chemotherapy and/or brain injury during a bone marrow transplant may affect a child’s intellectual development and school performance., which may not be evident until years after transplant.

(18:58) Transplant may make a child infertile. Sperm banking or egg harvesting may enable patients to have children in the future.

(22:06) Sexual development is different from fertility. If a child is not advancing through puberty normally, early intervention with hormone supplementation may help

(24:33) Transplant can change physical appearance and body image, which can impact emotional health.

(27:30) A detailed summary of all treatments before, during and after transplant is important for a child to have and to give to all physicians who care for the patient for the rest of his/her life

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WHO WE ARE: BMT InfoNet is dedicated to providing patients and their loved ones with emotional support and high quality, easy-to-understand information about blood stem cell transplants (bone marrow, peripheral blood and cord blood) and other cellular therapies. Whether you are just beginning your transplant or cellular therapy journey, or learning to manage the joys and challenges of survivorship,

BMT InfoNet is here to help before, during and after treatment. Our goal is to empower you with credible information and emotional support, so that you can take a more active role in decisions affecting your health. [ Ссылка ]

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