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In this episode, Haylie Pomroy and Jaime Seltzer discuss the challenges faced by patients with myalgic encephalomyelitis (ME/CFS) and Post-COVID Syndrome (or Long COVID) in obtaining proper diagnosis and treatment due to the lack of understanding among medical providers.

Together, they emphasize the importance of patient-reported symptoms in diagnosing ME/CFS accurately and discuss efforts by Jaime’s organization, ME Action, to improve clinical care and education.

Don’t miss out on this episode as Jaime and Haylie explain the complexities of post-viral conditions like ME/CFS and Long Covid, including the relationship between viral damage, immune responses, and genetic factors. Explore the various sources of symptoms in these conditions and the need for personalized approaches to address them effectively.


Key points:
00:00 Introduction
01:57 Understanding infection-associated chronic illnesses.
03:03 The relationship between infection and chronic illness.
05:47 What characterizes POTS?
07:13 POTS signals orthostatic intolerance.
10:17 Is Long COVID linked to ME/CFS and POTS?
14:16 What we can learn from MERS and SARS.
18:35 Advocating hope and help in healthcare.
21:36 Pacing for individuals with chronic illnesses.
27:16 Different diagnostic approaches for chronic illnesses.
28:38 What is Post-Exertional Malaise (PEM)?
30:08 Jaime’s vision for improved ME/CFS care.
32:52 MEAction’s Missing Million campaign.
36:10 How to show support for MEAction.
43:18 Understanding post-viral conditions.
48:35 Epigenetic factors causing ME/CFS and Long Covid.


Resources Mentioned:

Mayo Clinic Paper, “Diagnosis and Management of Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome”:
[ Ссылка ]

Pacing and Management Guides:
[ Ссылка ]

Neuroinflammation Research Review (2019) by Jaime Seltzer:
[ Ссылка ]

Subscribe to the MEAction Newsletter:
[ Ссылка ]

Donate to the MEAction Network:
meaction.net/donate


Jaime Seltzer is the Director of Scientific and Medical Outreach at ME Action, a nonprofit advocating for those with chronic illnesses. She bridges communication between healthcare, government, and research sectors, representing ME Action globally. Additionally, Jaime collaborates with institutions like Stanford Medicine and Mayo Clinic Rochester on post-infectious chronic diseases research. She brings personal insight to her work as someone living with ME/CFS.

LinkedIn: [ Ссылка ]
Twitter: [ Ссылка ]
Website: [ Ссылка ]

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