Meet Christine, who lives with HPX (hereditary hyperekplexia), a rare genetic condition. Hereditary hyperekplexia is a rare genetic neurological condition that causes jerky movement, exaggerated startle reactions and muscle rigidity.
These reactions can be triggered by a variety of stimuli, including unexpected sounds, lights, or movements. Some people with hyperekplexia are diagnosed as babies, while others, like Christine do not receive a diagnosis until adulthood.
For 35 years, Christine was denied access to benefits due to the lack of a diagnosis. Everything changed when she came to The Brain Charity for support. Our team helped Christine through the tribunal process, providing guidance and even accompanying her for reassurance. With our help, Christine was finally able to access the benefits she needed.
Christine shares how her journey to The Brain Charity has changed her life—she no longer worries about money and has found a community where she feels free to be herself.
Watch Christine’s story and learn more about how The Brain Charity supports people with neurological conditions.
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