If you need ongoing support, I hope you'll join my facebook group: "Thriving with DCIS". In this video I'm talking about the one piece of information that would have made a world of difference to me as a DCIS survivor, when navigating my path toward mastectomy, a term called “Comedo Necrosis,” which was on my pathology report but which no one brought to my attention. Disclaimer: The opinion shared in this video is that of my own medical professional and may not be shared by your oncologist.

- Related Videos:

The following amazing video came out after I made my video here. It is a pathologist's description of DCIS from a technical perspective, telling the story of how low grade DCIS differs from high grade DCIS and when comedo necrosis enters in: [ Ссылка ]

This video illustrates the dilemma of over treatment for DCIS, which is the reason I was searching for information about why DCIS is sometimes dangerous and sometimes not: [ Ссылка ]

My Perspective on DCIS Two Years Ago (I was very naive): [ Ссылка ]

The playlist of my entire Mastectomy Story: [ Ссылка ]

- Links:

The only other video/site that I've EVER found that adequately describes DCIS: [ Ссылка ]

There are ongoing trials which allow women to "watch and wait" rather than undergoing surgery for DCIS. Amount of comedo necrosis is the factor that determines eligibility for these trials, which further supports the opinion of the doctor who advised me. This study shows how much variability there is among medical professionals when it comes to the threshold for comedo necrosis, showing that we are still in the infancy period when it comes to the treatment for this disease:

[ Ссылка ]

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