On this month’s webinar, Sonya Chowdhury and Chris Ponting will explain the DecodeME recruitment process and update you on progress. If you're over 16, live in the UK and have a ME/CFS diagnosis, sign up: [ Ссылка ]
Patients Life of Pippa’s Pippa Stacey and Blue Sunday: the Tea Party For ME creator Anna Redshaw will appear in video messages, explaining their roles talking to the online ME/CFS community about the study and encouraging people to register.
Claire Tripp, a carer and part of the study’s Patient and Public Involvement steering group, will explain the important role ME/CFS patients and carers play in making the study as inclusive as possible.
We know it takes a lot of energy to watch webinars like this, so we really appreciate you giving us your time. [ Ссылка ]
TIMESTAMPS:
0:03 Sonya Chowdhury's welcome
2:39 Claire Tripp on the role patients and carers play in the study
16:40 Anna Redshaw & Pippa Stacey's videos on their role in communicating the study
21:05 Chris Ponting's update on study progress
24:08 Q&A session
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