A discussion about the need for better insurance coverage for rare diseases and how the legislature can address the issue.
Participants:
Citizen advocate Anne St. Martin
Erica Barnes, Executive Director of the Minnesota Rare Disease Advisory Council
Minnesota State Representative Liz Reyer
Discussion facilitated by MCD Council member Quinn Nystrom.
A segment from the 2023 MCD Legislative Forum
Transcript: [ Ссылка ]
