We heard from experts about progress into research and key points about living with and managing the condition.
Our panelists include:
Professor Peter Zammit, Professor of Cell Biology
Dr Emma Matthews, Consultant Neurologist specialising in Neuromuscular disorders
Nicholas Emery, Neuromuscular Clinical Specialist Physiotherapist.
Dr Ronan Astin, Consultant in Respiratory and Ventilation Medicine
An adult who lives with Facioscapulohumeral muscular dystrophy, offering a first hand perspective on managing the condition.
Kerry Spink, providing a parent’s viewpoint on supporting children with FSHD
