Tori's Triumph is a documentary chronicling the story of Lesa and Brennan Brackbill and their daughter Tori. Tori was diagnosed with Krabbe (crab-ay), a terminal disease that took her life at 19 months and 27 days. If Krabbe is caught at birth it can be treated. However, only six states (NY, MO, KY, OH, IL, and TN) currently have Krabbe as part of their mandatory Newborn Screenings. Lesa and Brennan chose joy and chose to spend the few months they had with her in love and life, not in grief.

If you would like to donate to the cause, please visit [ Ссылка ]

From Tori's Triumph's Facebook page:

Our mission is to further awareness about Krabbe and other leukodystrophies by telling Tori’s story and by advocating for Newborn Screening for Krabbe.

Her story has been published and is available here:
[ Ссылка ]

A portion of all book sales will go directly to Hunter’s Hope Foundation to assist in their advocacy and family support efforts.

Music credits:

Tori’s Triumph by Dean Byler

Acoustic Breeze by www.bensound.com

Acoustic Folk Instrumental by David Hyde Music

Tomorrow by www.bensound.com

Porches and Universes by Puddle of Infinity

Running Waters by Audionautix is licensed under a
Creative Commons Attribution license ([ Ссылка ])
Artist: [ Ссылка ]

Fresh Fallen Snow by Chris Haugen Tenderness by www.bensound.com

I Am a Man Who Will Fight for Your Honor by Chris Zabriskie is licensed under
a Creative Commons Attribution license ([ Ссылка ])
Source: [ Ссылка ]
Artist: [ Ссылка ]

Better Days by www.bensound.com

Secret Conversations by The 126ers

Let Hope Arise by Dean Byler

Photography credits:

Photography courtesy of Lesa Brackbill, Shannon Thornton Photography,
Sarah B Photography, Thomas Beaman Photography, Erin Fortney Photography,
Katie Bingaman Photography, and Blink Motion Productions.

Special Thanks to Children’s Hospital of Pittsburgh of UPMC and Dr. Escolar.

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