"Our pediatrician has been nudging us: "Are you sure you want to do these things?" [ Ссылка ]
A mother of a 22-month old with leukodystrophy talks about how their pediatrician is helping them consider their goals of care for their child, and helping them think about which interventions they want for their child. They respect our choices but are helping us not treat her just to treat her. Our goal is comfort care. If your child has leukodystrophy or another pediatric life threatening illness, the mom shares her perspective which may help you find your way. Visit www.courageousparentsnetwork.org to see more videos.
