Couldn't imagine my life without the most special girl in the world. It is my greatest honor to celebrate her and be on this journey with her! Noella was diagnosed with 18q Deletion Syndrome in 2020, this is her story! Also announcing the return of our annual Rare Disease Day Fundraiser and our first annual 5k fundraising event!!
All links mentioned:
ORDER MERCH HERE: [ Ссылка ]
*The 5K registration will be out soon - I will update this post and put the link here when it is open!
blog posts about 18q-/more on her story:
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instagram highlights: [ Ссылка ]
#rarediseaseday #chromosomedeletion #specialneedsjourney
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