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This is the official video for #RareDiseaseDay 2018!
Show your rare. Show you care.
Rare Disease Day is a patient-led campaign that brings together millions of patients, families, carers, medical professionals, policy makers and members of the public in solidarity - everyone can get involved!
The video features patients and family members, researchers and doctors who show their rare. Join them and show your support for the rare disease community - #ShowYourRare during the month of February on social media. Simply post an image or selfie on any social media channel with your face painted and include the hashtags #ShowYourRare, #MyRare or #RareDiseaseDay. Find out more here: [ Ссылка ]
Read Yara’s story here: [ Ссылка ]
Read Annie’s story here: [ Ссылка ]
Read Enzo’s story here: [ Ссылка ]
Read Antoine and Alexandre’s story here: [ Ссылка ]
Thank you also to the other stars of the video: Zoé, who is living with Congenital myasthenic syndrome, Sylvain a doctor who has treated patients with rare diseases and Mirina who is living with Ehler-Danlos… biographies coming soon!
Watch the video in 24 other languages! [ Ссылка ]
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