Joel and Jeslyn trialling Ensure Plus Powder - 17th May 2021
Joel is 19 and has Cystic Fibrosis.
Our Hospitals change tenders every 5 years, so with that we have changes in supplements.
Our hospital was still ordering Pediasure for the hospital and we’re having to order Vital 1.5 cal from the previous company.
The new drinks available are Fresubin and neither Joel or Jeslyn liked the taste.
I put in feedback with our hospital stating it was unfair for kids with Autism and Sensory needs and my feedback was heard.
Our children’s hospital agreed to order and have Ensure Plus delivered every 3 months til Joel transitions to SCGH (Adult Hospital)
Joel had his last admission at PCH in February when he turned 18.
Adult clinic was approaching so I emailed our CF Nurse Specialist to give the Dietitian time to look into this.
We didn’t have a win but we received a good compromise.
Powdered Ensure.
Today I asked Jeslyn if she would help him mix a bottle and taste test it.
Jeslyn is on Sustagen due to her own feeding difficulties and she really likes Ensure Plus.
Sometimes Joel will give her one for brekky and they sit and drink them together.
We are pretty lucky to have kids who support each other through everything.
So here’s the first taste test.
We hope to make more videos with recipe ideas too.
Ensure Plus Crazy Shakes
Ensure Plus Hot Chocolate
and what we affectionately call an Operation Chubby Chops Shake with added calories like MCT powder or Calogen.
