Biobank consent models: towards increased participant engagement in
biobanking
Biobanks depend not only on their ability to obtain samples and data for research, but also on reliable informed consent procedures for participants. Various consent models have been developed to manage the particular challenge for consent in the biobank context, which is to meet both, the specific needs of biobank-based research and the expectations of research participants and other stakeholder groups. It is vital for biobank sustainability to take the ethical and societal implications into account.
Lecture by Dr. Melanie Goisauf
The lecture was part of INTEGROMED project webinar ''Clinical data management from the perspective of researchers and biobanks.''
INTEGROMED is funded by the European Union under the Horizon 2020 program, grant agreement 857572.
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