Tune in for an informative and powerful conversation about the hidden struggles of rare autoinflammatory conditions in the UK. We welcome Rachel Rimmer and Mark Telkman from Rare Autoinflammatory Conditions Community UK (RACC-UK) to illuminate the often-overlooked world of these chronic illnesses and how they differ from autoimmune diseases.

RACC-UK is a UK-based charity supporting individuals living with rare autoinflammatory conditions, their families, and carers. They work tirelessly to improve their lives through information, support, advocacy, working alongside healthcare professionals and informing policy.

Discover how RACC-UK creates a lifeline for patients facing isolation and empowers them to become active participants in their healthcare. Learn about their valuable resources and initiatives that make a real difference in the lives of those living with autoinflammatory conditions.

Join us as Rachel shares her poignant diagnosis journey in the search for answers. Despite symptoms from birth, it took over a decade for her to be diagnosed with Mevalonate Kinase Deficiency (MKD). We learn about this experience and how it led to advocacy and becoming the Director of RACC-UK.

This conversation is more than just a medical exploration; it's a call to action. We'll discuss the challenges of raising awareness, receiving a timely diagnosis, and ensuring a better future for all affected by these complex conditions.

Whether you're a patient, a healthcare professional, or simply someone who wants to understand the unseen struggles of others, this interview is for you. Tune in and be part of the solution.

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