First time parents Nate and Katherine describe their decision-making process in deciding to continue the pregnancy following a devastating diagnosis in utero. The doctors looked to them to decide what to do between the ultrasound, birth, post-birth. "It was weighty." They received advice from an adult palliative doctor and heard about older children with it who helped them the types of complications and issues their son was likely to have. "We decided not to terminate his life and also not to prolong it." They describe how the doctors seemed confused by this decision, even as they were very respectful. The pregnancy was a time of great uncertainty and anxiety.
