Baby Hoyte is about 7 weeks old here and had just come home from his first stay in the NICU after he was born 32 weeks preemie with an EA/TEF repair needed and NEC. He has tracheomalacia and laryngomalacia with extreme GERD. He ultimately had many 'blue spells' and one "blue death" resulting in Mommy resuscitating him at home and 2 subsequent Nissen Fudoplication surgeries and frequent hospitalizations for a host of bronchial and GI issues. A later video is also posted now that he is 2 so you can see how happy he is now. This was a very difficult time for us, as we had 2 year old twins as well. If you are going through this ... HANG IN THERE. They need TLC but will improve with time and are exceedingly happy to be alive.
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