"Without places like the Children's Respite Trust, I don't know if we would have coped. Life is tough for Jaxson and ultimately for us as well."
Vickie's son Jaxson was diagnosed with CHARGE syndrome, a rare genetic disorder that causes breathing difficulties, heart complications, development delays, poor vision and deafness.
During a time of desperate need, Vickie found the Children's Respite Trust, a Make Some Noise charity based in Sussex that provides support for children living with disabilities and respite for their families.
The centre has become a second home for Vickie's family.
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