Sudden Unexpected Death in Epilepsy (SUDEP) can happen to anyone, but there are some risk factors that if you know about you can try and mitigate. Hear from Anthony Maffie’s mother and aunt about what they wish they knew, and learn about research that Dr. Nuria Lacuey is currently doing to better understand breathing and stimulation techniques that may help prevent SUDEP in the future.
#SUDEP #CUREepilepsy #EpilepsyResearch

The main risk factor for SUDEP is the presence and frequency of generalized tonic-clonic seizures. These are the typical grand mal seizures; having three or more per year increases the risk of SUDEP by 15 times. The most important approach for SUDEP reduction is decreasing seizure frequency. We need to emphasize the importance of medical treatment adherence and surgical counseling for drug-resistant patients. Also, stimulating patients after seizures trying to wake them up may help recovery and therefore nocturnal supervision and seizure detection devices may be useful.

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