"Patient Engagement: Drug Development in Rare Disease," - Presented by Annette Bakker, PhD, Kaleb Yohay, MD, and Mike Stevenson PhD at the NF Summit 2024
CTF Engage bridges the gap between government regulators, researchers, and patients in neurofibromatosis and schwannomatosis. By collaborating with Patient Representatives, researchers can improve their studies and accelerate the research process.
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What is the Children's Tumor Foundation?
Founded in 1978, the Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors.
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