"Pediatric Palliative Care and Support for Parents of Sick Children: CPN does UVM Grand Rounds" [ Ссылка ]
Executive Director/Founder Blyth Lord talks about the origins, mission and model of Courageous Parents Network; and parent Sarah Casey talk about how CPN & palliative care helped her navigate her daughter's illness journey with Gaucher disease, and end-of-life. With the support of CPN, palliative care, counseling, family and friends, Sarah and her husband have no decisional regret.
Presented as Pediatric Grand Rounds at University of Vermont Children's Hospital, January 2017.
