During this keynote presentation, Kristina Robinson and Victor Roggli, MD, adults with cystic fibrosis, talk with Raksha Jain, MD, MSc, medical director of the adult CF and bronchiectasis program at UT Southwestern, on the continuum of aging with CF.

Learn the latest research around cardiovascular health, the aging gender gap, screening guidelines, and menopause; share experiences in how CF treatments have evolved over time and how conversations with specialists outside of CF can be difficult; learn tips for partnering with your CF Care Center to have proactive conversations on living longer with CF; and find out how to get involved in existing resources to shape the future of aging research.

Originally recorded April 27, 2023.

00:00:00 | Knocking on the Aging Door: What we know, what we don’t know, and where we’re going
00:00:05 | ResearchCon co-chairs thank attendees
00:02:20 | Introduction to Kristina Robinson and Victor Roggli, closing keynote speakers
00:02:50 | Victor, a 72-year-old adult with CF, shares his journey
00:06:17 | How have CF treatments evolved over time?
00:08:12 | Increase in aging population
00:10:30 | Victor shares changes he has experienced as he is aging
00:15:05 | Introduction of Raksha Jain, MD, MSc
00:15:40 | Change in the CF population and in complications
00:19:45 | How do you balance education and career planning
00:21:40 | Considerations around family planning
00:24:20 | Introduction to CF clinical care guidelines
00:25:25 | Cancer screening and prevalence among older adults with CF
00:28:35 | Cardiovascular complications within adults with CF
00:30:13 | Identifying menopause in adults with CF
00:31:55 | Introduction to bone health screening guidelines
00:33:40 | Cognitive disorders associated with aging
00:34:38 | Intersection of care teams
00:35:40 | Kristina, a 48-year-old adult with CF, shares her story
00:37:46 | Kristina shares her three C’s approach: connect, communicate, and collaborate
00:40:47 | How you can get involved in the CF Community
00:42:35 | Being a part of Community Voice
00:44:30 | ResearchCon co-chairs share closing remarks

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