Content of the video:
- Patient Testimony on Racism in the framework of the SCD Patients Educational Session by ERN-EuroBloodNet&ASCAT: Spotlight on Racism. An interactive webinar with patients testimonies lead by expert physicians and a patient testimony. Open discussion with the audience.
ASCAT 2022 January has been organized in collaboration with European Hematology Association & British Society for Haematology, and was focused on the topic of ‘Improving the lives of people living with Sickle Cell Disease and Thalassaemia: a focus on new therapies and person-centered care.’ Also for the 2021 edition it has been confirmed the collaboration with The Annual Scientific Conference on Sickle Cell and Thalassemia and the ERN-EuroBloodNet for organizing the patients educational session was confirmed.
Topics were pre-identified by participants of previous edition: Racism, Mental Health, Pregnancy and Bone Marrow Transplant, so it has been decided to have two interactive webinars and two interactive panel:
- SCD Patients Educational Session by ERN-EuroBloodNet&ASCAT: Spotlight on Racism : an interactive webinar with patients testimonies lead by expert physicians. Open discussion with the audience.
- SCD Patients Educational Session by ERN-EuroBloodNet&ASCAT: Spotlight on Mental Health : an interactive webinar with patients testimonies and lead by two specialised psychologists. Open discussion with the audience
- SCD Patients Educational Session by ERN-EuroBloodNet&ASCAT : Spotlight on Pregnancy: an interactive panel lead by an expert physician, a specialised obstetrician and a patients representatives. Open discussion with the audience.
- SCD Patients Educational Session by ERN-EuroBloodNet&ASCAT: Spotlight on Bone Marrow Transplant: an interactive panel lead by one expert physician and a patient representative. Open discussion with the audience.
Also for this edition, and in line with the general objectives of the project, participants of the sessions presented the outcomes at the closing plenary session of the ASCAT 2022.
Created by ERN-EuroBloodNet and ASCAT.
Disclaimer: This video is carried out within the framework of European Reference Network on Rare Haematological Diseases (ERN-EuroBloodNet)-Project ID No 101085717. ERN-EuroBloodNet is partly co-funded by the European Union within the framework of the Fourth EU Health Programme.
Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or European Health and Digital Executive Agency (HaDEA). Neither the European Union nor the granting authority can be held responsible for them.
