This video is part of a larger CE/CME Certified program entitled: From Child to Adult: Successful Transitional Care for X-Linked Hypophosphatemia. You can receive free CME credit, view this video, and download slides from the presentation at [ Ссылка ]
XLH: An Uncommon But Treatable Disorder
Теги
MedEd On The GoMedEd OTGPediatricsX-linked hypophosphatemiarare diseasesdisordertreatmenttreatment goalsindividualized treatmentXLHadultsdisease impactsOutcomescomplicationsQoLQuality of lifeLong-term careManagementLife-long managementEarly awarenessTimely diagnosismisdiagnosisadult care modelhealth care transitionhealthcare transitioncare planningmultidisciplinary teampatient journeypatient dialoguepatient communications
