Over six million people are affected by primary immunodeficiencies (PIs), among which 70 to 90% remain undiagnosed. Individuals with undiagnosed PI are at increased risk for recurrent infections, cancers, and autoimmune diseases. Many diagnosed with PI struggle to navigate complex health systems.
That is why Project ECHO at Penn State College of Medicine and the Immune Deficiency Foundation (IDF) launched a virtual series to help prepare key health partners to best serve the PI community. This series was open to community health workers, patient navigators, school nurses and those serving the larger PI community. The curriculum provides an overview of up-to-date evidence-based recommendations, resources, and guidelines for patients with PI.
