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Stretchy skin, hypermobility, dislocations — these symptoms can be a sign of Ehlers-Danlos syndrome, a rare genetic connective tissue disorder that affects people in multiple ways.

Izzy Kornblau, who has EDS, launched a YouTube channel to raise awareness about the condition. She’d been researching what was happening with her body for years before being diagnosed in 2017. Now, she hopes others like her can sooner learn why they may be experiencing EDS symptoms.

For Kornblau, EDS means she has hypermobile joints and stretchy skin. It also affects her stomach, autonomic nervous system, heart, and voice. She says that she feels people don't realize how much EDS patients are impacted by their condition day-to-day, and that some medical professionals have a lack of information on the condition.

According the U.S. National Library of Medicine, at least one in 5,000 people have some type of EDS around the world. Kornblau, who now considers herself an “encyclopedia of knowledge” on Ehlers-Danlos syndrome, says she hopes to teach the world much more about the condition.

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