Cindy Abbott is a rare disease advocate who lives with Wegener's granulomatosis. Cindy struggled with medical professionals for 14 years before she was diagnosed. Her mission is to raise awareness through the power of media for NORD and for the need for faster diagnosis of rare disorders. Cindy is currently preparing for her third Alaskan Iditarod in an effort to raise awareness for rare diseases by carrying the Rare Disease Day banner during the race. [ Ссылка ]

Get involved in rare disease advocacy by joining NORD's Rare Action Network at rareaction.org.

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