Hope aged 3 years and 3 months. seizures out of nowhere! one minute playing and walking, the next minute full drop to the floor and into a seizure! crying out for her daddy in these new ones, video is heartbreaking to watch 💔 but awareness is for others and for the doctors is our reason in recording! again ends with smiles 🙂 high fives, followed with a nap from exhaustion caused by the seizures, but it kills us that she's going through these daily all day long 😔, again leicester royal infirmary hospital have left her to it, over 5 months over due for an appointment, last seen in November with a letter saying follow up due in 4 months, its now end of July! 😤 again no blood test for her kidneys which is supposed to be every 6 months, she's had 2 in 3 years! Time for the phone call of complaint, again I think 🤔
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