UVA’s pediatric transplant specialists offer compassionate, individualized care for children before, during and after a transplant. We’re the only hospital in the region to perform pediatric organ transplants from newborns to young adults. We receive patients from across Virginia and beyond to help children through the most complex cases to recovery.
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The news of hearing that your child may end up needing a liver transplant is probably some of the most shocking news a parent can hear.
I think that’s one of the most important parts of our mission; to meet parents in the early stages of finding out that this might be a possibility. That way, we can get to know them, get to know their child, and give them the most personalized, in-depth advice that we can.
My role is really to coordinate care and to make sure that the family knows that I’m an ally and a part of their family in many ways.
It’s not just a patient that goes through a transplant, it’s the whole family. So how do we best help a parent think through, “How do you work and do this? How do you support your other children and do this? How do you arrange housing? How do you manage all of this?”
It’s a small community feel, and we’re able to offer this specialized care that normally you’d have to go to a much larger city to receive.
We have a school here, and we’re able to keep the kid’s life as normal as possible. And then we also can collaborate outside of the office if they need any kind of special assistance with other services or programs, such as psychiatry or teen health.
One of the most satisfying things about my job is calling a family and saying, “We have found an organ, and we think it’s your turn.” I think the power of that moment is indescribable. And it just feels good.
One of the things of the benefit of being in this job a long time is I’ve witnessed those recoveries. And I’ve learned from every single patient and family. To see a child that I met who’s in college now; I’ve witnessed it, so I can speak to how this road looks.
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