Rare Diseases South Africa Rare Disease Partner Programme Concept Note
The RDSA Rare Diseases Partnership Programme (RDPP) is a platform for commercial companies to support the rare disease cause, and develop a greater understanding of issues of importance to Persons Living with Rare Diseases (PLWRD) in South Africa.
The RDPP aims to foster a long-term collaborative relationship and a constructive dialogue between RDSA and a select group of leading companies committed to helping people with rare diseases. Members include pharmaceutical, biotech and medical device companies that are developing or marketing therapeutic or diagnostic products, as well as companies that are engaged in other aspects of healthcare for the rare disease/orphan product community such as specialty pharmacies, distributors, contract research organizations, and integrated healthcare systems.
Through the RDPP, RDSA aims to work with the corporate health sector to share its expertise engaging public and private institutions involved in the rare disease and orphan drug fields.
The RDPP will engage commercial companies to:
• Build a regional network of companies working in areas that affect PLWRD.
• Exchange perspectives on issues of mutual interest, as reflected in RDSA’s programme areas (Advocacy, Navigation, Engagement and Research.)
• Stimulate companies across many industries to address the needs of patients
• Provide financial support to advance RDSA’s mission and vision
