See the transcript here: [ Ссылка ]
See the slides here: [ Ссылка ]
Kristen Bottema-Beutel is an Associate Professor of Special Education in the Lynch School of Education and Human Development. She conducts research that characterizes social interactions involving autistic children, youth, and adults, and examines how home and school interactions can support learning and development. She also conducts research on quality and ethics issues in autism intervention literature. She has published more than 50 manuscripts, which have been published in top-tier journals such as Psychological Bulletin, Journal of Child Psychiatry and Psychology, and Autism: The International Journal of Research and Practice. Her research has been funded by the National Institutes of Health, and she currently serves as a Deputy Editor for Autism in Adulthood. She has presented her research at national and international conferences on topics related to autism, special education, and social interaction. Dr. Bottema-Beutel directs the doctoral program in Curriculum and Instruction, and the Autism Certificate Program in the Lynch School of Education and Human Development at Boston College.
In this webinar, we will discuss three interconnected issues related to researcher ethics; research quality, conflicts of interest, and adverse effect reporting. Systematic reviews have repeatedly shown that a large proportion of autism research fails to meet established quality indicators. One reason why low-quality research may persist is because researchers do not protect against conflicts of interests (COIs) they may hold. Recent work in our lab has found that conflicts of interest (COIs) are widespread, and rarely reported in autism research. COIs occur when the researcher stands to gain when their research shows specific results (that an intervention is effective, for example), and can lead to researcher bias which threatens the integrity of the research and erodes public trust. We have also conducted a study indicating that monitoring and reporting adverse events that occur during intervention trials is rare in autism research. This makes it difficult for autistic people, families, and practitioners to weigh potential benefits of an intervention against potential negative effects of participation. Improvements in disclosing COIs and reporting adverse events should be top priorities in efforts to improve autism research quality.
Follow us on Facebook!
[ Ссылка ]...
Take a look at our website, where we post the latest in NJ Autism News [ Ссылка ]
Join our mailing list to keep up-to-date with our center [ Ссылка ]
NJACE is funded in part by the New Jersey Governor’s Council for the Medical Research and Treatments of Autism and by the NJ DOH
The views expressed herein may not necessarily reflect the views of the NJACE or our partners, the Governor's Council for Medical Research and Treatments in Autism, the New Jersey Department of Health, and Children's Specialized Hospital.
The mission of the NJACE is to educate society about the neurobiology of autism, and autistic people‘s unmet needs across their lifespan. We do this by listening to the perspectives of autistic people, their parents and families, clinicians from interdisciplinary fields, and researchers from various fields including psychology, genetics, engineering, and computer science. We hope to build an all-inclusive community, which embraces autistic people as valued members of our society.
