The Barth Syndrome Foundation was honored to have Dr. Barry Byrne as the Keynote Speaker of our 2014 International Scientific, Medical & Family Conference held June 23-28, 2014 in Clearwater, FL.
Title: Orphan Product Development in the Era of Personalized Medicine
Note: The video opens with an introduction by Nicole, mom of Devin, who has Barth Syndrome. Also included in this video is an introduction to Dr. Barry Byrne given by RJ, who has Barth syndrome.
