Living withTrisomy 13 Patau Syndrome [ Ссылка ]
SOFT Support Organization for Trisomy 18, 13 and Related Disorders [ Ссылка ]
Trisomy 13 LIFE Patau Syndrome Group [ Ссылка ]
TRIS Tracking Rare Incidence Syndromes project [ Ссылка ]
Trisomy Support Resources for Families and Professionals caring for them.
Natalia adaptive skiing with this wonderful program. Two 2 1/2 hour sessions. The first day the men had some interesting music playing as they taped...enjoy. The second day they took her through some trees, even got some air on a run... you can hear her humming some of her own tunes. She had a blast!!!

U.S. Adaption Recreation Center, Big Bear Mountain, California Dec. 2009
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