Often patients with visible signs of neurofibromatosis, or NF, struggle to be seen as more than just their NF, while patients whose NF is invisible struggle to make others understand. Make NF Visible is about seeing NF, and seeing the person living with it. With your help, 2021 is the year that the Children’s Tumor Foundation will Make NF Visible. Please join us.
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CTF partnered with award-winning photographer Craig Warga to create photographs of people living with neurofibromatosis in visible and invisible ways. To see Craig Warga's photos and read more about these individuals, go to: [ Ссылка ]
The NF Heroes in this video are, in order of appearance:
Julia Perfetti, Alex Owens, Brianna Worden, Marcus Ratley, Ken Rudd
, McKinnon Galloway
, Jane Constable
, Jackson Decillis
, Aidan Fraser, Sandy Frenia, Owen Frenia
, Laura Barbieri
, Altana Mukabenov
, Yaniry Lora, El Evans,
Eric Rogers, Alexandra Mora
, Daniel McAvoy, Robert Emolo, Aiden Warga, Alwyn Dias, and
Amaya Rottloff.
What is the Children's Tumor Foundation?
Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors.
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#endnf #nf1 #nf2 #nf2swn #swn #childrenstumor #neurofibromatosis #schwannomatosis #nervetumor #tumor
