Involving community partners in the design, execution and dissemination of research yields more impactful studies that address the priorities of the communities being studied, and benefits researchers, healthcare providers and target communities. This presentation will review the principles of Community Based Participatory Research (CBPR), discuss its late arrival to the field of autism research highlighting the ongoing contributions of AASPIRE, and review US government support of patient centered research through PCORI funding. We will illustrate the benefits of collaborating with community partners by presenting a project in which a team of researchers and a team of autistic community advocates are co-producing autism research.
Presentation slides and resources available here: [ Ссылка ]
This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under the grant #UT2MC39440. The information, content and/or conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.
